簡易檢索 / 詳目顯示

研究生: 陳明宗
Chen, Ming-Tsung
論文名稱: 視聽雙障大學生校園生活適應之探究
A Study to Investigate School Adjustment of College Students with Deafblindness
指導教授: 張千惠
Chang, Chien-Huey
口試委員: 何英奇 韓福榮 張千惠
口試日期: 2021/08/26
學位類別: 碩士
Master
系所名稱: 特殊教育學系
Department of Special Education
論文出版年: 2021
畢業學年度: 109
語文別: 中文
論文頁數: 244
中文關鍵詞: 視聽雙障大學生大學校園生活適應社會支持質性研究生態系統理論
英文關鍵詞: College students with deafblindness, adjustment to college life, social support, qualitative research, Ecological System Theory
研究方法: 半結構式訪談法
DOI URL: http://doi.org/10.6345/NTNU202101278
論文種類: 學術論文
相關次數: 點閱:109下載:0
分享至:
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報
  • 本研究旨在探究視聽雙障大學生在大學的校園生活之適應情形及所需的社會支持。研究者以質性研究之方式蒐集資料,使用半結構式訪談題綱進行深度訪談。並為部分研究參與者進行功能性視覺評估與紀錄結果。同時,所蒐集的其他資料包含:IEP資料或ISP資料影本、部分研究參與者個人出版的書籍或其接受報紙或電視專訪的影片段落。
    本研究邀請了七位視聽雙障者成為主要研究參與者以及其中三位的重要他人(兩位母親及一位資源教室教師)作為次要參與者。本研究並使用主題分析法來分析上述資料,融合貫通整理出質性編碼,且透過持續歸納法找出各大主題以回答研究問題。
    在研究結果部分,內文依序討論七位研究參與者的大學校園適應情形,針對其學業學習、人際互動情形提出綜合討論與建議。本研究結果顯示,在學業學習適應的部分,視聽雙障大學生應具備主動詢問與積極求援的能力(assertiveness)、掌握資源與申請的能力、積極追蹤資源申請進度的能力、溝通上課方式調整的能力、取得適合之上課書籍與講義的能力、善用剩餘視覺與聽覺提升學習效率的能力、溝通調整考試方式的能力、與同學和學伴建立互惠的能力、找到小組報告夥伴的能力、在小組協作(collaboration)中成為領導者的能力、建構獨立交通與行走的能力。
    而學校方面則應協助培訓學伴提升其對於協助視聽雙障者的專業知能。且學校應協助落實ISP會議與所訂之目標並提供所需協助以促進其學業的適應。
    在人際互動方面,視聽雙障大學生應具備主動並提早告知他人關於自身狀況與需求的能力、主動尋求協助的能力(Assertiveness)、善用與人良好溝通的方法與策略的能力、與同學建立互助互惠之良好關係的能力。
    此外,本研究根據生態系統理論作分析,亦發現視聽雙障個體(微視系統)與家庭成員、朋友(中介系統),乃至於校園環境(外系統)與社會制度(鉅視系統)都是息息相關且互相影響的。例如:視聽雙障者(微視系統)與視聽雙障者家庭(中介系統)會受到校園環境(外系統)與社會制度(鉅視系統)的阻礙,進而在校園生活與學習方面經常受挫。所以,為了培養視聽雙障大學生具備積極樂觀的個性以提升其人際互動能力,前述系統中的家人、學校、教育單位也可以及早教育視聽雙障者關於其獨特性並持續給予正向鼓勵與支持。
    而本研究亦根據研究結果提出視聽雙障大學生所需之家人、教師以及朋友的情感支持、有形支持、訊息支持以及陪伴支持等做為建議。同時,根據本研究結果,研究者針對視聽雙障者本人、家人、學校及教育行政單位等提出的建議,期待本研究對於未來視聽雙障大學生的大學校園適應能有所幫助。最後,本文亦提出研究限制及未來建議。

    The purpose of this study to explore the adjustments and social supports of college students with deafblindness in their college life. The researcher conducted qualitative research, collecting data through in-depth and semi-structured interview guide. Other data included some IEPs or ISPs, functional vision assessments and reports, reflextive journal, books written by one participant, and TV or newspaper interview videos about few participants.
    In this study, seven participants with deafblindness and three significant others were invited as the participants. For data analysis, thematic analysis methods were used to analyze data. Finally, codes were merged and induced to themes for answering the research questions.
    Next, the reseacher discussed the adjustment issues of the seven participants, respectively. And the researcher comprehensively discussed their adjustments in academic learning and interpersonal interactions. The results of this study found that, in order to adjust to their college life, the students need to master the following abilities to: (a) actively ask for help, that is, assertiveness, (b) identify and locate resources, (c) actively track the progress of resource applications, (d) communicate and find adaptation methods in class, and (e) obtain alternative forms of reading materials for class.
    Additionaly, for the sake of surviving for college life, the students with deafblindness need the abilities to: (a) communicate with lecturers about the alternatives regarding assignments and tests, (b) make good use of the remaining vision and hearing to improve learning efficiency, (c) build reciprocity with classmates and school partners, (d) find group members for collaborating reports, and (e) become a leader in group collaboration. What’s more, the school needs to train peer assistants to improve their professional knowledge for providing assisstances, and make sure the school disability resourse centers hold ISP meetings regularly and provides assistances.
    In terms of interacting with others, the students need the ability to proactively and inform others of their own conditions and needs earlier. They also need the abilities to: (a) seek assistance in assertive ways, (b) find methods and strategies for good communication with others, and (c) establish a good relationships with classmates.
    In addition, based on the Ecological System Theory, this research found that individuals with deafblindness, family members (microsytem), friends (mesosytem), the college environments (exosytem) and social systems (macrosytem) are closely and mutually related. For example, family members (microsytem), friends (mesosytem), and colleges (exosytem) can educate students with deafblindness early about their uniqueness and provide positive supports so that they can have a positive and optimistic attitude for appropriate social skills.
    Based on the results, the researcher also discussed the emotional supports, tangible supports, information supports, and companion supports needed to be provided by family members, teachers, and friends which were required for college students with deafblindness.
    Based on the results of the study, suggestions were given to the individuals with deafblindness, their families, schools, and the educational administration institutions. The reseacher hopes that the results of this study will be helpful for college students with deafblindness in adapting to college life. Finally, research limitations and future suggestions were provided.

    第一章 緒論1 第一節 研究背景與研究動機1 第二節 研究目的與研究問題2 第三節 名詞解釋3 第二章 文獻探討5 第一節 視聽雙障之內涵5 第二節 視聽雙障大學生之社會支持6 第三節 視聽雙障大學生之困難與需求10 第四節 從生態系統理論(Ecological system theory)看視聽雙障大學生之大學校園適應21 第三章 研究方法27 第一節 研究設計27 第二節 研究參與人員27 第三節 研究工具33 第四節 資料蒐集、管理與分析34 第五節 研究的信實度36 第六節 研究倫理38 第四章 研究結果41 第一節 美華的學業與人際互動之適應45 第二節 淑麗的學業與人際互動之適應72 第三節 志明的學業與人際互動之適應86 第四節 羅傑的學業與人際互動之適應97 第五節 宗彥的學業與人際互動之適應109 第六節 永康的學業與人際互動之適應133 第七節 家豪的學業與人際互動之適應156 第五章 綜合討論177 第一節 從生態理論看視聽雙障者的大學校園生活適應歷程177 第二節 視聽雙障大學生學業適應185 第三節 視聽雙障大學生人際互動適應199 第四節 視聽雙障大學生所需之社會支持204 第六章 結論與建議213 第一節 研究結論213 第二節 研究建議215 第三節 研究限制與未來研究建議219 參考文獻221 附錄一 研究參與者同意書239 附錄二 功能性視覺評估表241

    TVBS 優選頻道(2017)。打不倒的夢想!盲按摩師充實之旅。https://www.youtube.com/watch?v=Eh6hQOmTutU
    大愛電視(2015)。年輕人讚起來-不一樣的視界。https://www.youtube.com/watch?v=pONKz9tLVag
    內政部(2018)。身心障礙者人數-障礙、縣市及年齡別【原始數據】。http://sowf.moi.gov.tw/stat/month/list.htm
    心路早療研發團隊(2010)。談0至6個月幼兒的語言發展。http://baby.syinlu.org.tw/knowledge_detail.php?k=6&id=8
    王信凱(2008)。從微光裏看見豔彩:一位視覺障礙運動員的生命故事〔未出版碩士論文〕。國立臺灣師範大學體育研究所。
    王國慧(1999)。兒童「語言發展遲緩」的界定與教育。http://www.kmuh.org.tw/www/kmcj/data/8802/4168.htm
    王淑珍、朱思泉(2007)。視覺和聽覺的關係。國際耳鼻咽喉頭頸外科雜誌,4,199-202。
    江佩珊(2015)。盲聾大學生溝通困境與需求之個案研究。溝通障礙教育半年刊,2(2),12-20。http://doi.org/10.6933/TJLCD.201512_2(2).0002
    吳秀照(2005)。從理論到實踐:身心障礙就業服務之理念與服務輸送的探討。社區發展季刊,112,104-115。
    吳劍雄(2002)。身心障礙者就業對策之探討。勞工之友季刊,597,17-19。
    李澤慧(2015)。特殊兒童溝通與交往。南京師範大學出版社。
    林玉霞(2004)。盲聾雙障者的功能性溝通技巧評估。「2004 視覺障礙教育國際學術研討會」發表之論文,國立臺南大學視障教育與重建中心。
    林宏熾(1997)。身心障礙者的終生轉銜與生涯規劃。特殊教育季刊,64,5-11。
    林秋坪(2005)。視聽障礙者動作學習之探討與輔導。學校體育,88,54-61。http://doi.org/10.29937/PES.200506.0011
    林麗英(2012)。談0個月到6歲嬰幼兒的語言發展。http://aandb.pixnet.net/blog/post/28190061-%E8%AB%870%E5%80%8B%E6%9C%88%E5%88%B06%E6%AD%B2%E5%AC%B0%E5%B9%BC%E5%85%92%E7%9A%84%E8%AA%9E%E8%A8%80%E7%99%BC%E5%B1%95
    林寶貴(2002)。語言障礙與矯治。五南。
    林寶貴(2011)。溝通障礙理論與實務。心理出版社。
    非凡電視(2017)。【台灣真善美】"愛的抓龍"公益助弱勢。https://www.youtube.com/watch?v=QQ7h8ONLqQk
    柯明期(2003)。中途失明者適應與重建之研究〔未出版碩士論文〕。國立臺灣師範大學特殊教育研究所。
    洪瑞璇(2001)。大學女性院長生命故事之研究〔未出版碩士論文〕。國立臺灣師範大學教育研究所。
    徐道昌、吳香梅、鍾玉梅(1992)。語言治療學。大學圖書出版社。
    國家教育研究院(2019)。生命歷程。http://terms.naer.edu.tw/detail/1304147/。
    張千惠(2017a)。張千惠的個人網站。https://sites.google.com/a/gapps.ntnu.edu.tw/sofchang/home/list
    張千惠(2017b)。定向行動技能檢核表。https://sites.google.com/a/gapps.ntnu.edu.tw/sofchang/otherresources/mss
    張千惠(2017c)。定向行動老師之角色與應負職責。https://sites.google.com/a/gapps.ntnu.edu.tw/sofchang/otherresources/mr
    張千惠、謝曼莉(2017)。定向行動理論與實務全集。秋圃文教基金會。
    張潤書(2004)。行政學。三民。
    莊明貞、陳怡如(譯)(2005)。質性研究導論(原作者:C. Glesne)。高等教育。(原著出版年:1999)
    莊惠鈞(2009)。中途視障者家庭關係變化之研究〔未出版碩士論文〕。國立暨南國際大學社會政策與社會工作學研究所。http://doi.org/10.6837/NCNU.2009.00044
    許芳瑜(2008)。家長參與智能障礙者轉銜歷程之研究-應用生態系統觀點〔未出版碩士論文〕。國立臺灣師範大學復健諮商研究所。
    許益得(1998)。身心障礙者就業之問題與對策。社會福利,138,27-38。
    陳秀雅(1992)。成年後失明者的適應歷程及影響因素之研究〔未出版碩士論文〕。國立彰化師範大學特殊教育研究所。
    陳芸英(2006)。盲鬥士:柯燕姬傳奇。寶瓶文化。
    陳穎(2019)。兒童的語言發展階段。http://ying016.pixnet.net/blog/post/29196374-%E5%85%92%E7%AB%A5%E7%9A%84%E8%AA%9E%E8%A8%80%E7%99%BC%E5%B1%95%E9%9A%8E%E6%AE%B5
    曾志偉、張千惠(2018)。車禍後腦傷造成的視覺障礙者定向行動需求之探究。第五屆海峽兩岸特殊教育高端論壇會議手冊,國立台灣師範大學特殊教育學系。
    曾怡惇(2010)。盲聾生的溝通與輔具之探討。國小特殊教育,49,53-61。http://doi.org/10.7034/SEES.201006.0053
    曾怡惇(2012)。藍芽盲用筆電在盲聾生母子溝通對話之個案研究。特殊教育學報,35,23-46。http://doi.org/10.6768/JSE.201206.0023
    曾怡惇(2013)。「行事曆系統」在盲聾生時間概念教學之行動研究。特殊教育學報,38,55-82。http://doi.org/10.7034/SEES.201112.0016
    曾靖雯(2015)。盲聾教學策略對盲聾生溝通發展之行動研究〔未出版碩士論文〕。國立臺南大學特殊教育學系。
    黃月美(2006)。舞動生命:高齡者之休閒體驗〔未出版碩士論文〕。國立臺灣師範大學公民教育與活動領導研究所,。
    黃惠惠(1996)。自我與人際溝通。張老師。
    萬明美(2000)。中途失明成人致盲原因及適應歷程之研究。特殊教育研究學刊,19,59-78。
    葉至誠(2001)。職業社會學。五南。
    臺北啟明學校(2009)。「視聽雙障教育研討會」手冊。臺北啟明學校。
    潘淑滿(2003)。質性研究-理論與運用。心理出版社。
    蔡佳穎(2010)。肢體障礙者社會支持與生活品質相關因素之探討〔未出版碩士論文〕。高雄醫學大學醫學社會學與社會工作學研究所。
    Alice Cogswell and Anne Sullivan Macy ACT, H.R. 1959, S. 813 (2021). https://cogswellmacyact.org/deafblindness-and-cogswell-macy-act/
    Allman, C. B., & Lewis, S. (2014). ECC Essentials: Teaching the Expanded Core Curriculum to Students with Visual Impairments. American Printing House for the Blind, USA.
    Alsop, L. (Ed.) (1993). A resource manual for understanding and interacting with infants, toddlers, and preschool age children with deaf-blindness. Logan, UT: Ski-Hi Institute, Utah State University.
    American Printing House for the Blind (2021). Building learning skills for children with multiple disabilities. https://familyconnect.org/multiple-disabilities/learning/
    Arndt, K. (2011). College Students Who Are Deaf-Blind. National Consortium on Deaf-Blindness, 7, 1-4.
    Arndt, K., & Parker, A. (2016). Perceptions of Social Networks by Adults Who Are Deafblind. American Annal of the Deaf, 161(3), 369-383. http://doi.org/10.1353/aad.2016.0027
    Atkinson, R. (1998). The Life Story Interview. London, SAGE Publications. http://doi.org/10.4135/9781412986205.n2
    Barraga, N. C. (1990). Infusion of research and practice into personnel preparation. In E. W. Hill (Ed.), Research and practice in the field of visual impairment: 70 years of vision at Peabody. Peabody Journal of Education, 67, 10-21. http://doi.org/10.1080/01619569009538677
    Bloom, L. (1993). The transition to language. In L. Bloom (Ed.), The transition from infancy to language: Acquiring the power of expression (pp. 79-109). New York: Cambridge University Press. http://doi.org/10.1017/CBO9780511752797.006
    Bourquin, E. & Sauerburger, D. (2005). Teaching deaf-blind people to communicate and interact with the public. Re: view, 37(3), 109-116. http://doi.org/10.3200/REVU.37.3.119-117
    Bruce, S. M. (2005). The application of werner and kaplan’s concept of “distancing” to children who are deaf-blind. Journal of Visual Impairment and Blindness, 99(8), 464-477. http://doi.org/10.1177/0145482X0509900803
    Bruce, S. M. (2007). Using action plans to support communication programming for children who are deafblind. RE: view, 39(2), 71-83. http://doi.org/10.3200/REVU.39.2.71-84
    Bruce, S. M., Bashinski, S. M., Covelli, A. J., Bernstein, V., Zatta, M. C., & Briggs, S. (2018). Positive Behavior Supports for Individuals Who Are Deafblind with CHARGE Syndrome. Journal of Visual Impairment & Blindness, 112(5), 497-560. http://doi.org/10.1177/0145482X1811200507
    Bruce, S. M., Zatta, M. C., Gavin, M., & Stelzer, S. (2017). Socialization and Self-Determination in Different-Age Dyads of Students Who Are Deafblind. Journal of Visual Impairment & Blindness, 110(3), 149-161. http://doi.org/10.1177/0145482X1611000302
    Bruce, S., & Parker, A. T. (2012). Young Deafblind Adults in Action: Becoming Self-determined Change Agents Through Advocacy. American Annals ofthe Deaf, 157 (1), 16-26. http://doi.org/10.1353/aad.2012.1607
    Bruce, S., Ferrell, K., & Luckner, J. L. (2016). Guidelines for the Administration of Educational Programs for Students who are Deaf/Hard of Hearing, Visually Impaired, or Deafblind. Journal of the American Academy of Special Education Professionals, 47-59. http://doi.org/10.1177/1525740115597507
    Bruce, S., Godbold, E., & Naponelli-Gold, S. (2004). An analysis of communicative functions of teachers and their students who are congenitally deafblind. RE: view, 36(2), 81-90. http://doi.org/10.3200/REVU.36.2.81-92
    Buhler, C. (1933). Der Menschliche Lebenslauf Als Psychologisches Problem (The Course of Human Life as a Psychological Problem). Leipzig: S. Hirzel. http://doi.org/10.1093/geronj/15.2.199
    Cantin, S., Cybis, W., Trudeau, S., Poncet, F., Wittich, W., & Wanet-Defalque, M. (2019). Assessment of a Communication Assistive Technology for Individuals with Deafblindness: A Case Study. Journal of deafblind studies on communication, 5, 73-95. http://doi.org/10.21827/jdbsc.5.32575
    Chang, S. C. H., & Schaller, J. (2002). The views of students with visual impairments on the support they received from teachers. Journal of Visual Impairment & Blindness, 96, 558-575. http://doi.org/10.1177/0145482X0209600803
    Chang, S. C. H., & Schaller, J. L. (2000). Perspectives of adolescents with visual impairments on social support from their parents. Journal of Visual Impairment and Blindness, 94(2), 69-84. http://doi.org/10.1177/0145482X0009400202
    Charity, R., & Philip, S. (2000). Creating classroom environments that nurture independence for children who are deafblind. Portland, OR: Child Development and Rehabilitation Center. (ERIC Document Reproduction Service No. ED450512)
    Chen, D., Downing, J., & Rodriguez-Gil, G. (2001). Tactile Strategies for children who are deaf-blind: Considerations and concerns from Project SALUTE. Deaf-Blind Perspectives, 8 (2), 1-6.
    Cohen, S., & Wills, T. A. (1985). Stress, Social Support, and the Buffering Hypothesis. Psychological Bulletin, 98, 310-357. http://doi.org/10.1037/0033-2909.98.2.310
    Corn, A. L., & Erin, J. N. (2010). Foundations of Low Vision: Clinical and Functional Perspectives. American Foundation for the Blind, New York, NY.
    Correa- Torres, S. M., & Bowen, S. K. (2016). Recognizing the needs of families of children and youth who are deafblind. American Annals of the Deaf, 161(4), 454–461. http://doi.org/10.1353/aad.2016.0037
    Cox, P. R., & Dykes, M. K. (2001). Effective classroom adaptations for students with visual impairments. Teaching Exceptional Children, 33, 68–74. http://doi.org/10.1177/004005990103300609
    Davenport, S. L. H., & Hefner, M. A. (2011). In T. S. Hartshorne, M. A. Hefner, S. L. H. Davenport, & J. W. Thelin (Eds.), Overview and sensory issues. CHARGE syndrome (pp. 3–12). San Diego, CA: Plural.
    Duline, D., & Hatwell, Y. (2006). The effects of visual experience and training in raised-line materials on the mental spatial imagery of blind persons. Journal of Visual Impairment and Blindness, 100(7), 414-424. http://doi.org/10.1177/0145482X0610000705
    Dyzel, V., Oosterom-Calo, R., Worm, M., & Sterkenburg, P. (2020). Assistive Technology to Promote Communication and Social Interaction for People With Deafblindness: A Systematic Review. Frontiers in Education. Assistive Technology, Communication, and Interaction, 5, 1-14. http://doi.org/10.3389/feduc.2020.578389
    Edwards, T. (2015). Bridging the gap between Deaf Blind minds: interactiona land social foundations of intentional tribution in the Seattle Deaf Blind community. Front. Psychol, 6, 1-13. http://doi.org/10.3389/fpsyg.2015.01497
    Edwards, T. (2017). Sign-creation in the Seattle DeafBlind community: A triumphant story about the regeneration of obviousness. John Benjamins Publishing Company, 16(2), 304–327. http://doi.org/10.1075/gest.16.2.06edw
    Ehn, M., Anderzén-Carlsson, A., Möller, C., & Wahlqvist, M. (2019). Life strategies of people with deafblindness due to Usher syndrome type 2a - a qualitative study. International Journal of Qualitative Studies on Health and Well-being, 14, 1-15. http://doi.org/10.1080/17482631.2019.1656790
    Elder, G. H. (1985). Life course dynamics: trajectories and transitions. USA, Ithaca New York Cornell University Press.
    Erikson, E. (1950). Childhood and society (1st ed.). New York: Norton.
    Everson, J. M., & Moon, M. S. (1987). Transition services for young adults with severe disabilities: defining professional and parental roles and responsibilities. Journal of the Association for Persons with Severe Handicaps, 12(2), 87-95. http://doi.org/10.1177/154079698701200201
    Fabiana, P., & Walter, D. (1999). Guidelines for teaching orientation and mobility to children with multiple disabilities. Re:View, 31(3), 113-119.
    Fisher, D. (2005). Educating children with multiple disabilities: A collaborative approach. Mental Retardation, 43(1), 66-67. http://doi.org/10.1352/0047-6765(2005)43%3C63:BR%3E2.0.CO;2
    Gee, K., Harrell, R., & Rosenberg, R. (1987). Teaching orientation and mobility skills within and across natural opportunities for travel: A model designed for learners with multiple severe disabilities. In Goetz, L., Guess, D., & Stremel-Campbell, K. (Eds.), Innovative Program Design for Individuals with Dual Sensory Impairments (pp. 49-75). http://doi.org/10.1097/00003446-198808000-00035Baltimore: Paul H. Brookes.
    Gense, J. D., & Gense, M. (1999). The orientation and mobility skills for students who are deaf-blind. (EDRS Accession NO. ED436058). 8/17/2009 Retrieved from EBSCOhost Databases.
    Geruschat, D. R. (1980). Orientation and mobility for the low functioning deaf-blind child. Journal of Visual Impairment and Blindness, 74(1), 29–33. http://doi.org/10.1177/0145482X8007400107
    Gillham, B. (2000). Case study research methods. New York, NY: Continuum.
    Girma, H. (2020). I am Harvard Law’s first deafblind graduate. Here's what college is like for students with disabilities. https://www.cnbc.com/2020/01/03/what-college-is-like-for-students-with-disabilities-according-to-a-harvard-grad.html.
    Greene, R. R., & Ephress, P. H. (1991). Human behavior theory and social work practice. N.Y.: Aldine de Gruyter.
    Hammersley, M. (1992). What’s wrong with Ethnography? London, United Kingdom: Routledge.
    Haney, S. D., Hartshorne, T. S., & Nicholas, J. (2015). Self-regulation of behavior in CHARGE syndrome. DbI Review, 55, 55–60.
    Hartmann, E., & Weismer, P. (2016). Technology implementation and curriculum engagement for children and youth who are deafblind. American Annals of the Deaf, 161(4), 462–473. http://doi.org/10.1353/aad.2016.0038
    Hartshorne, T. S., & Salem-Hartshorne, N. (2011). Social/emotional. In T. S. Hartshorne, M. A. Hefner, S. L. H. Davenport, & J. W. Thelin (Eds.), Genetic syndromes and communication disorders series. CHARGE syndrome (pp. 205-211). San Diego, CA, US: Plural Publishing Inc..
    Hartshorne, T. S., & Schmittel, M. C. (2016). Social- emotional development in children and youth who are deafblind. American Annals of the Deaf, 161(4), 444–453. http://doi.org/10.1353/aad.2016.0036
    Hartshorne, T. S., Hefner, M. A., & Davenport, S. L. H. (2005). Behavior in CHARGE syndrome: Introduction to the special topic. American Journal of Medical Genetics, 13(3), 228-231. http://doi.org/10.1002/ajmg.a.30541
    Hartshorne, T. S., Stratton, K. K., Brown, D., Madhavan-Brown, S., & Schmittel, M. C. (2017). Behavior in CHARGE syndrome. American Journal of Medical Genetics, 175, 431–438. http://doi.org/10.1002/ajmg.a.30545
    Havighurst, R. J. (1952). Developmental tasks and education. New York: MacKay.
    Heaney, C.A., & Israel, B.A. (2008). Social networks and social support. In Glanz, K.;Rimer, B.K.;Viswanath, K. (eds.). Health Behavior and Health Education: Theory, Research, and Practice (4th ed.). San Francisco, CA: Jossey-Bass. http://doi.org/10.1177/109019819101800409
    Hersh, M. A. (2013). Deafblind People, Communication, Independence, and Isolation. Journal of Deaf Studies and Deaf Education, 18(4), 446-463. http://doi.org/10.1093/deafed/ent022
    Hersh, M. A. (2016). Deafblind people, stigma and the use of communication and mobility assistive devices. Assistive Devices, Technology and Disability, 25(4), 245-261. http://doi.org/10.3233/TAD-130394
    Heward, W. L. (2018). Exceptional Children: An Introduction to Special Education, 11th edition. Pearson, UK.
    Hierholzer, A. C. & Bybee, J. (2017). Working with Randolph-Sheppard Entrepreneurs Who Are Deafblind: A Qualitative Analysis. Journal of Visual Impairment & Blindness, 111(1), 61-71. http://doi.org/10.1177/0145482X1711100106
    House, J. S. (1981). Work stress and social support. Reading, MA: Addison-Wesley. http://doi.org/10.1007/978-94-009-5179-2_8
    Hudson, D. (1994). Causes of emotional and psychological reactions to adventitious blindness. Journal of Visual Impairment and Blindness, 88, 498-503
    Individuals with Disabilities Education Act (2019). IDEA Statute and Regulations. https://sites.ed.gov/idea/statuteregulations/
    Jackson, R., & Lawson, G. (1995). Family environment and psychological distress in persons who are visually impaired. Journal of Visual Impairment and Blindness, 89, 1-5. http://doi.org/10.1177/0145482X9508900211
    Jaiswal, A., Fraser, S., & Wittich, W. (2020). Barriers and Facilitators That Influence Social Participation in Older Adults With Dual Sensory Impairment. Frontiers in Education. Participation and Dual Sensory Impairment, 5, 1-11. http://doi.org/10.3389/feduc.2020.00127
    Kamenopoulou, L. (2012). A study on the inclusion of deafblind young people in mainstream schools: key findings and implications for research and practice. British Journal of Special Education, 39(3), 137-145. http://doi.org/10.1111/j.1467-8578.2012.00546.x
    Keller, H. (2010). The Story of My Life. USA, Signet: Penguin Publishing Group. http://doi.org/10.2307/3402538
    Krause, N. (1986). Social support, stress, and well-being. Journal of Gerontology, 41(4), 512–519. http://doi.org/10.1093/geronj/41.4.512
    Kubler-Ross, E. (1969). On Death and Dying. N. Y.: Macmillan.
    Lamichhane, K. (2011). Fingerbraille: An investigation of Japanese methods for communicating with individuals who are deaf-blind. Journal of Visual Impairment and Blindness, 105(3), 181-185. http://doi.org/10.1177/0145482X1110500312
    Langford, C. P. H., Bowsher, J., Maloney, J. P., & Lillis, P. P. (1997). Social support: a conceptual analysis. Journal of Advanced Nursing, 25(1), 95–100. http://doi.org/10.1046/j.1365-2648.1997.1997025095.x
    Lolli, D., & Sauerburger, D. (1997). Learners with visual and hearing impairments. In Blasch, B. B., Wiener, W. R., & Welsh, R. L. (Eds.), Foundations of Orientation and Mobility (2nd ed., pp. 513-529). Suite, NY: AFB.
    Luchterhand, E., & Angrosino, M. V. (1989). Documents of interaction: Biography, autobiography, and life history in social science perspective. Contemporary Sociology , 19(6), 917. http://doi.org/10.2307/2073270
    Mallinckrodt, B., & Fretz, B. R. (1988). Social support and the impact of job loss on older professionals. Journal of Counseling Psychology, 35(3), 281-286. http://doi.org/10.1037/0022-0167.35.3.281
    Margaret, N. M. (2010). Social Interaction of Children with Deafblind in Special Schools and Units in Kenya. The Master Degree’s Paper of Southwest University, 11.
    Maxwell, J. A. (1996). Qualitative Research Design: An Interactive Approach. Thousand Oaks, CA: Sage. http://doi.org/10.1177/1094428106290193
    McDonnall, M. C., & Cmar, J. R. (2018). Experiences of Young Adults with Deafblindness after High School. Journal of Visual Impairment & Blindness, 4, 403-410. http://doi.org/10.1177/0145482X1811200407
    Miles, B. (1997). Talking the language of the hands to the hands. The important of hands for the person who is deafblind. DB-LINK Fact Sheet. Monmouth, OR: DB-LINK, The National Information Clearinghouse on Children Who Are Deaf-Blind. (ERIC Document Reproduction Service No. ED419331)
    Miles, B. (1999). What is Communication? In Barbara Miles & Marianne Riggio(Eds.), Remarkable Conversations. A guide to developing meaningful communication with children and young adults who are deafblind. pp. 1-19. Watertown, MA: Perkins School for the Blind.
    Miles, B., & Reggio, M. (1999). A Guide to Developing Meaningful Communication with Children and Young Adults Who Are Deafblind. Perkins School for the Blind, Watertown, Mass.
    Murdoch, H. (1986). Helping the deaf-blind child in class. Br J Spec Educ, 13, 75-7.
    Nannemann, A. C., Bruce, S. M., & Covelli, A. (2017). Positive behavior supports for a young adult with CHARGE syndrome. Journal of Visual Impairment & Blindness, 111, 175–180. http://doi.org/10.1177/0145482X1711100210
    National Center on Deaf-Blindness. (2018). Primary etiologies of deaf-blindness—Frequency. https://nationaldb.org/library/page/1944
    Nelson, C., & Bruce, S. M. (2016). Critical issues in the lives of children and youth who are deafblind. American Annals of the Deaf, 161(4), 406–411. http://doi.org/10.1353/aad.2016.0033
    Nelson, C., Greenfield, R. G., Hyte, H. A., & Shaffer, J. P. (2013). Stress, Behavior, and Children and Youth Who are Deafblind. Research & Practice for Persons with Severe Disabilities, 38(3), 139–156. http://doi.org/10.2511/027494813809330243
    Nelson, C., Hyte, H. A., & Greenfield, R. (2016). Increasing self-regulation and classroom participation of a child who is deafblind. American Annals of the Deaf, 160(5), 496–509. http://doi.org/10.1353/aad.2016.0002
    Parker, A. T. (2009). Orientation and mobility with persons who are deaf-blind: An initial examination of single subject design research. Journal of Visual Impairment & Blindness, 103(6), 372-377. http://doi.org/10.1177/0145482X0910300607
    Parker, A. T., & Nelson, C. (2016). Toward a comprehensive system of personnel development in deafblind education. American Annals of the Deaf, 161(4), 486–501. http://doi.org/10.1353/aad.2016.0040
    Patton, M. (1990). Qualitative evaluation and research methods (pp. 169-186). Beverly Hills, CA: Sage. http://doi.org/10.1002/nur.4770140111
    Perkins School for the Blind (2021). Deafblind. https://www.perkins.org/school/deafblind/.
    Pogrund, R. L. (2014). Book Review: ECC Essentials: Teaching the Expanded Core Curriculum to Students with Visual Impairments. Journal of Visual Impairment & Blindness, 108(6), 519-522. doi:10.1177/0145482X1410800613
    Prickett, J., & Welch, T. (1998). Educating students who are deafblind. In S. Z. Sacks & R. K. Silberman (Eds.), Educating school participation who have visual impairments with other disabilities (pp. 139-159). Baltimore: Paul H. Brookes Publishing Co.
    Project Aspiro (2021). Friends & Family. http://www.projectaspiro.com/en/friends-and-family/Pages/default.aspx.
    Reed, C. M., Delhorne, L. A., Durlach, N. I., & Fischer, S. D. (1995). A study of the tactual reception of sign language. Journal of Speech and Hearing Research, 38, 477-489. http://doi.org/10.1044/jshr.3802.477
    Reyenga, S. (2018). This Deaf Blind Life. https://www.thisdeafblindlife.com/blog.
    Rocchio, L. (2021). Living a Whole Life: Destiny Home Community Residence. National Center on Deaf-Blindness. http://doi.org/10.1080/010503901300112176
    Rönnberg, J. & Borg, E. (2001). A review and evaluation of research on the deaf-blind from perceptual, communicative, social and rehabilitative perspectives. Selective review of the deaf-blind, 30, 67–77. http://doi.org/10.1080/010503901300112176
    Rowland, C., & Schweigert, P. (1997). Research to practice focus on hands-on problem solving skills for children with deaf-blindness. Deaf-Blind Perspectives, 5, 3-10.
    Sacks, S. Z., Wolffe, K. E., & Tierney, D. (1998). Lifestyles of students with visual impairments: Preliminary studies of social networks. Exceptional Children, 64(4), 463-478. http://doi.org/10.1177/001440299806400403
    Salomone, P. R., & Piage, R. E. (1984). Employment problems and solutions: perceptions of blind and visually impairment adults. Vocational Guidance Quarterly, 33, 147-156. http://doi.org/10.1002/j.2164-585X.1984.tb01090.x
    Sarason, B. R., Pierce, G. R., & Sarason, I. G. (1990). Social Support: The Sense of Acceptance and the Role of Relationships. In B. R. Sarason, I. G. Sarason, & G. R. Pierce (Eds.), Social Support: An Interactional View. Hoboken, NJ: John Wiley & Sons.
    Sisson, L. A., Van Hasselt, V. B., & Hersen, M. (1987). Psychological approaches with deaf-blind persons: strategies and issues in research and treatment. Clin Psychol Rev, 7, 303-328. http://doi.org/10.1016/0272-7358(87)90038-9
    Slevin, M. L., Nichols, S. E., Downer, S. M., Wilson, P., Lister, T. A., Arnott, S., Maher, J., Souhami, R. L., Tobias, J. S., Goldstone, A. H., & Cody, M. (1996). Emotional support for cancer patients: what do patients really want?. British Journal of Cancer, 74(8), 1275–1279. http://doi.org/10.1038/bjc.1996.529
    Texas School for the Blind and Visually Impaired (2021). What is the Expanded Core Curriculum? https://www.tsbvi.edu/math/3973-ecc-flyer.
    Tilden, V. P., & Weinert, S. C. (1987). Social support and the chronically ill individual. Nursing Clinics of North America, 22(3), 613–620.
    Tuttle, D. W. (1987). The role of the special education teacher-counselor in meeting students’ self-esteem needs. Journal of Visual Impairment and Blindness, 81, 156-161. http://doi.org/10.1177/0145482X8708100409
    U. S. Department of Education (2018). 40th Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act.
    Uchino, B. (2004). Social Support and Physical Health: Understanding the Health Consequences of Relationships. New Haven, CT: Yale University Press.
    United Nations (1993). The standard rules on the equalization of opportunities for persons with disabilities. New York: United Nations.
    Van Hasselt, V. B., Hersen, M., Egan, B. S., McKelvey, J. L., & Sisson, L. A. (1989). Increasing social interactions in deaf-blind severely handicapped young adults. Behav Modif, 13, 257-272. http://doi.org/10.1177/01454455890132007
    Van Uden, A. M. J. (1977). A world of language for deaf children. Lisse, The Netherlands: Swets & Zeitlinger.
    Vreeken, H. L., Nispen, R. V., Kramer, S., & Rens, G. V. (2020). ‘Dual Sensory Loss Protocol’ for Communication and Wellbeing of Older Adults With Vision and Hearing Impairment – A Randomized Controlled Trial. Frontiers in Psychology, 11, 1-13. http://doi.org/10.3389/fpsyg.2020.570339
    Watkins, S., & Clark, T.C. (1991). A coactive sign system for children who are dual sensory impaired. American Annals of the Deaf, 136, 321-324. http://doi.org/10.1353/aad.2012.0556
    Wiley, D. (2021). Person-Centered Transition Planning. Perkins eLearning. https://www.perkinselearning.org/videos/webcast/person-centered-transition-planning.
    Wills, T. A. (1985). Supportive functions of interpersonal relationships. In S. Cohen;L. Syme (Eds.). Social support and health. Orlando, FL: Academic Press, 61–82.
    Wills, T. A. (1991). Margaret, Clark (Ed.). Social support and interpersonal relationships. Prosocial Behavior. Review of Personality and Social Psychology, 12, 265–289.
    Withrow, H. (2017). Family Support Makes a Difference with a Deafblind Child: Orion’s Journey. New Directions in Deaf Education, 18, 38-43.
    Wolsey, J. A. (2017). Perspectives and Experiences of DeafBlind College Students. The Qualitative Report, 22(8), 2066-2089.
    Worm, M., Damen, S., Minnaert, A., & Janssen, M. (2020). Multiparty Conversations With People With Congenital Deafblindness: Operationalization, Significance, and Requirements. Frontiers in Education. Multiparty Conversations With Congenital Deafblindness, 5, 1-15. http://doi.org/10.3389/feduc.2020.542376
    XMIND (2021). XMIND. https://actsmind.com/blog/xmind/xmind3download
    Yin, R. K. (1989). Case Study Research Design and Methods. Sage, Newbury Park.
    Zatta, M., & McGinnity, B. (2016). An overview of transition planning for students who are deafblind. American Annals of the Deaf, 161(4), 474-485. http://doi.org/10.1353/aad.2016.0039

    無法下載圖示 電子全文延後公開
    2026/09/13
    QR CODE