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研究生: 高曼容
Gao, Man-Rong
論文名稱: 30至49歲女性乳癌患者之資訊焦慮與因應行為研究
Information Anxiety and Coping Behavior of Female Breast Cancer Patients aged 30-49
指導教授: 邱銘心
Chiu, Ming-Hsin
口試委員: 邱銘心
Chiu, Ming-Hsin
陳世娟
Chen, Shih-Chuan
蔡天怡
Tsai, Tien-I
口試日期: 2024/07/16
學位類別: 碩士
Master
系所名稱: 圖書資訊學研究所
Graduate Institute of Library and Information Studies
論文出版年: 2024
畢業學年度: 112
語文別: 中文
論文頁數: 99
中文關鍵詞: 健康資訊需求健康資訊行為資訊焦慮因應行為
英文關鍵詞: Health information needs, Health information behavior, Information anxiety, Coping behavior
研究方法: 半結構式訪談法關鍵事件法
DOI URL: http://doi.org/10.6345/NTNU202401581
論文種類: 學術論文
相關次數: 點閱:140下載:17
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  • 根據衛服部數據統計,30至49歲女性乳癌發生人數逐年上升,隨著網際網路的發達,網路也成為許多患者搜尋訊息的重要平台,獲取健康資訊的管道也逐漸多樣化。透過網際網路,資訊取得相對便利,女性乳癌患者除了從醫生獲得權威建議與診療策略之外,還會額外尋求相關的醫學知識與治療模式,期待醫護專家滿足她們多元的資訊需求,然而患者主動尋找資訊時容易遇上困難,同時搜尋到的資訊也會導致患者陷入篩選與理解的困境,造成患者的使用焦慮。因此,本研究目的為了解30至49歲女性乳癌患者者於確診時期所產生的資訊需求與資訊尋求行為,以及其資訊尋求過程中產生資訊焦慮情境之原因與因應行為,期望從中發現減少資訊焦慮情境之方法,提供女性乳癌患者與相關醫療照護機構相關因應對策與較佳之資訊提供方式,以便未來衛教資訊建置與傳播的參考,減少健康資訊帶來負面感受的可能性,幫助女性乳癌患者妥善運用資訊,有效了解病情與治療方案,順利進行治療決策。
    本研究以30至49歲女性乳癌患者為研究對象,透過半結構式訪談法結合關鍵事件法來搜集資料,總共訪談13位患者。研究結果發現,30至49歲女性乳癌患者確診後會主動了解自身疾病與治療方式等相關健康資訊,資訊需求與管道多元,因網際網路的普遍性與社群媒體的便利性,健康資訊與病友群體間的交流更加便利,互動頻率增加,內容也較豐富多元。當資訊尋求過程中遭遇資訊超載、資訊知能缺乏、外在壓力與龐雜的資訊管道上述四種困境與挫折時,容易引發資訊焦慮,造成心理負擔。從中發現患者們因此產生資訊焦慮因應行為包括迴避資訊、相信專業醫療人員、專注現病程階段所需資訊而不過度發散、病友關係支持與實踐健康資訊內容。
    本研究分析研究結果後提出以下結論:30至49歲女性乳癌患者的健康資訊需求以了解自身病情與治療方法為主,獲取資訊的管道多元,使用網際網路與社群媒體能獲取更多健康資訊以利後續治療決策,病友支持關係是乳癌患者的重要資訊來源之一,提供具體病程經驗的同時也會帶來負面資訊,形成資訊焦慮因素。資訊超載、資訊知能缺乏、負面資訊、外在壓力和龐雜的資訊管道是促成資訊焦慮的因素,乳癌患者藉由主動迴避過量資訊、病友支持關係與信任專業醫療人員的因應行為,能緩解資訊焦慮。
    最終,根據研究結果建議30至49歲乳癌女性患者增進自身資訊能力與資訊知能;醫療院所擔任患者們的資訊嚮導,整合患者所需的資訊;建議政府單位改善補助制度措施,惠及年輕乳癌群體。

    According to statistics from the Ministry of Health and Welfare, the number of female breast cancer cases aged 30 to 49 is gradually increasing. With the development of the technology, the Internet has become an important platform for many patients to search for information, and the resources for obtaining health information are gradually diversified. Accessibility of information is relatively convenient through the Internet. In addition to obtaining authoritative advice and diagnosis and treatment strategies from doctors, female breast cancer patients will also seek additional relevant medical knowledge and treatment models, expecting medical experts to meet their information needs. However, It is easy to encounter difficulties for patients when they searching for information. At the same time, the information can also cause patients to fall into the dilemma of screening and comprehension, leading patients to information anxiety. Therefore, the purpose of this study is to understand the information needs and information-seeking behaviors of female breast cancer patients aged 30 to 49 during the period of diagnosis, as well as the causes and coping behaviors of information anxiety situations during the information-seeking process, hoping to find ways to reduce information anxiety. The situational approach provides female breast cancer patients and relevant medical care institutions with relevant countermeasures and better information provision methods, so as to serve as a reference for future construction and dissemination of health education information, reduce the possibility of negative feelings caused by health information, help female breast cancer patients properly use information to effectively understand the condition and treatment plans, and make smooth treatment decisions.
    This study focused on female breast cancer patients aged 30 to 49 years old. Data were collected through semi-structured interviews combined with the critical incident method. A total of 13 patients were interviewed. The research results found that female breast cancer patients aged 30 to 49 will take the initiative to learn about their own disease and treatment methods and other related health information after diagnosis. The information needs and resources are diverse. Due to the ubiquity of the Internet and the convenience of social media, health information and communication among patient groups is more convenient, the frequency of interactions increases, and the content is richer and more diverse. When the information seeking process encounters the following four dilemmas and frustrations: information overload, lack of information knowledge, external pressure, and complex information resource, it is easy to cause information anxiety and stress. It was found that patients' response behaviors to information anxiety include avoiding information, trusting professional medical personnel, focusing on the information needed at the current stage of the disease without excessive divergence, patient relationship support, and practicing health information content.
    This study results the following conclusions: The health information needs of female breast cancer patients aged 30 to 49 are mainly to understand their own condition and treatment methods. There are multiple resources for obtaining information. Using the Internet and social media can obtain more health information. Information is used to facilitate subsequent treatment decisions. Patient support relationships are one of the important sources of information for breast cancer patients. While providing specific experience of the disease process, it also brings negative information, leading to information anxiety factors. Information overload, lack of information knowledge, negative information, external pressure and complicated information channels are factors that contribute to information anxiety. Breast cancer patients can alleviate information anxiety by proactively avoiding excessive information, supporting patient relationships and trusting professional medical staff.
    Based on the research results, it is recommended that female breast cancer patients aged 30 to 49 improve their information ability and information knowledge. Medical institutions should become information guides for patients and integrate the information needs of patients. It is recommended that government improve subsidy policy to benefit young breast cancer groups.

    第一章 緒論 1 第一節 研究背景與動機 1 第二節 研究目的與研究問題 3 第三節 研究範圍與限制 5 第四節 名詞解釋 8 第五節 研究貢獻 10 第二章 文獻探討 12 第一節 乳癌患者的健康資訊需求 12 第二節 乳癌患者的健康資訊行為 19 第三節 乳癌患者的資訊焦慮與因應行為 25 第四節 小結 31 第三章 研究方法與設計 33 第一節 研究方法 33 第二節 研究對象 37 第三節 研究工具設計 39 第四節 資料蒐集整理與分析 42 第五節 研究倫理 45 第四章 研究結果與分析 47 第一節 受訪者基本資料分析 47 第二節 30至49歲乳癌患者的健康資訊需求 50 第三節 30至49歲乳癌患者的健康資訊尋求行為 57 第四節 30至49歲乳癌患者促成資訊焦慮情境之原因 66 第五節 30至49歲乳癌患者在資訊焦慮情境下的因應行為與影響 72 第六節 綜合討論 77 第五章 研究結論與建議 81 第一節 研究結論 81 第二節 研究建議 85 參考資料 87 附錄一 受訪者徵求文 94 附錄二 研究參與同意書 96 附錄三 訪談大綱 98

    王梅玲(2012)。社會科學的大學教師電子期刊論文閱讀行為研究。國家圖書館館刊,101,1-30。
    王蔚芸、王桂芸、湯玉英(2007)。焦慮之概念分析。長庚護理,18,59-67。
    伍爾曼、張美惠(1994)。資訊焦慮,初版。時報文化。
    吳淑芬、林佑樺、李來涼、簡婉儀(2014)。婦科癌症患者的疾病不確定感與憂鬱之相關性探討。護理暨健康照護研究,10,83-93。
    呂桂雲、金繼春、黃惠萍(1993)。乳癌婦女的因應行為。護理研究,1,247-256。
    李蘭(1991)。健康行為的概念與研究。中華民國公共衛生學會雜誌,10,199-211。
    杜世興(2022)。台灣女性乳癌白皮書,100個非知不可的醫學知識,關於妳的乳房掌上微型Google冊= Breast cancer white paper for Taiwan female,初版,身體文化。
    林慧芬、曹昭懿(2019)。【論文摘要】乳癌婦女手術後支持性服務需求調查。物理治療,44,117-118。
    翁麗雀(2001)。乳癌病人之就醫行為。護理雜誌,48,71-74。
    張秀雲(2010)。乳癌患者之健康知能與健康照護結果之相關性研究。醫務管理學研究所,1-62。臺北醫學大學。
    張嘉彬(2004)。從資訊超載現象探討圖書館員所應扮演之角色。中國圖書館學會會報,72,53-67。
    張澄清(2016)。健康資訊尋求之預測因素探討與認知模型建構:統合分析之取徑。圖書資訊學研究所,1-233。國立臺灣大學。
    莊玟玲、金繼春(2002)。一位初診斷為乳癌婦女的訊息需求。醫護科技學刊,4,126-135。
    許麗齡(2002)。健康/醫療網站之需求與功能。台灣醫學,6,585-589。
    郭淑珍、陳怡君(2017)。求醫行為與社會網絡:以乳癌病患為例。人文社會與醫療學刊,67-97。
    陳世娟(2012)。癌症病患家庭照護者之資訊行為研究。1-223。國立台灣大學圖書資訊學研究所。
    陳世娟(2020)。癌症病患資訊迴避行為之探討。國立台灣大學圖書資訊學研究,15,35-66。
    曾令民(2019)。WHI十五年後的更年期荷爾蒙治療及乳癌趨勢。台灣更年期醫學會會訊,58,11-14。https://doi.org/10.6651/TMS.201903_(58).01
    黃柏堯、邱銘心(2010)。新聞記者網路之資訊尋求行為與資訊焦慮產生對守門行為影響之初探。
    葉乃靜(2007)。癌症網站資訊需求研究。圖書資訊學研究,1,71-89。
    蔡宜庭、方素瓔(2022)。基因表達分析對早期乳癌婦女接受術後輔助性化療選擇之統合分析。台灣醫學,26,287-301。
    蔡慧美(2003)。資訊焦慮對個人資訊尋求行為及模式的影響。美國資訊科學與技術學會臺北學生分會會訊,16,95-119。
    蔡麗雲、顧乃平、張澤芸、賴裕和(2001)。癌痛病患的焦慮、憂鬱及其相關因素之探討。新臺北護理期刊,3,23-33。
    謝清俊(1996)。兒童與新傳播科技。傳播研究簡訊,14-15。
    衛生福利部中央健康保健署(2024,3月11日)。衛生福利部中央健康保健署。https://www.nhi.gov.tw/ch/mp-1.html
    衛生福利部國民健康署(2024,4月1日)。癌症登記報告。衛生福利部國民健康署。https://www.hpa.gov.tw/Pages/TopicList.aspx?idx=1&nodeid=269
    E.S.M.O.(2018)。病患指南系列。European Society for Medical Oncology。
    Anastasiadi, Z., Lianos, G. D., Ignatiadou, E., Harissis, H. V., & Mitsis, M. (2017). Breast cancer in young women: an overview. Updates in surgery, 69, 313-317.
    Anderson, L., & Wilson, S. (1997). Critical incident technique. In Applied measurement methods in industrial psychology. (pp. 89-112). Davies-Black Publishing.
    Baqutayan, S. (2016). The Impact of Social Support on Clients with High Cancer Anxiety. Journal of Advanced Research in Social and Behavioural Sciences, 3(2), p 162-170.
    Beaver, K., Luker, K. A., Owens, R. G., Leinster, S. J., Degner, L. F., & Sloan, J. A. (1996). Treatment decision making in women newly diagnosed with breast cancer. Cancer nursing, 19(1), 8-19.
    Beisecker, A. E., & Beisecker, T. D. (1990). Patient information-seeking behaviors when communicating with doctors. Medical care, 19-28.
    Berland, G. K., Elliott, M. N., Morales, L. S., Algazy, J. I., Kravitz, R. L., Broder, M. S., Kanouse, D. E., Muñoz, J. A., Puyol, J.-A., & Lara, M. (2001). Health information on the Internet: accessibility, quality, and readability in English and Spanish. jama, 285(20), 2612-2621.
    Borgers, R., Mullen, P. D., Meertens, R., Rijken, M., Eussen, G., Plagge, I., Visser, A. P., & Blijham, G. H. (1993). The information-seeking behavior of cancer outpatients: a description of the situation. Patient Education and Counseling, 22(1), 35-46.
    Cawley, M., Kostic, J., & Cappello, C. (1990). Informational and psychosocial needs of women choosing conservative surgery/primary radiation for early stage breast cancer. Cancer nursing, 13(2), 90-94.
    Chan, T. K. H. (2021). Does Self-Disclosure on Social Networking Sites Enhance Well-Being? The Role of Social Anxiety, Online Disinhibition, and Psychological Stress. In Z. W. Y. Lee, T. K. H. Chan, & C. M. K. Cheung (Eds.), Information Technology in Organisations and Societies: Multidisciplinary Perspectives from AI to Technostress (pp. 175-202). Emerald Publishing Limited. https://doi.org/10.1108/978-1-83909-812-320211007
    Chell, E. (1998). Critical incident technique.
    Chell, E., & Pittaway, L. (1998). A study of entrepreneurship in the restaurant and café industry: exploratory work using the critical incident technique as a methodology: Prize-winning Paper from the IAHMS Conference at Sheffield Hallam University, England, November 199711Over fifty papers were pesented at the IAHMS Conference at Sheffield Hallam University in November 1997. A panel of judges, chaired by Conrad Lashley of Nottingham Trent University, decided that the best paper from a strong field was that by Elizabeth Chell and Luke Pittaway. The authors have been awarded the prize of one year’s free subscription to the International Journal of Hospitality Management. International Journal of Hospitality Management, 17(1), 23-32. https://doi.org/https://doi.org/10.1016/S0278-4319(98)00006-1
    Czaja, R., Manfredi, C., & Price, J. (2003). The determinants and consequences of information seeking among cancer patients. Journal of health communication, 8(6), 529-562.
    Degner, L. F., & Sloan, J. A. (1992). Decision making during serious illness: what role do patients really want to play? Journal of clinical epidemiology, 45(9), 941-950.
    Fallowfield, L. J. (2008). Treatment decision-making in breast cancer: the patient–doctor relationship. Breast Cancer Research and Treatment, 112(1), 5-13. https://doi.org/10.1007/s10549-008-0077-3
    Gray, N. J., Klein, J. D., Noyce, P. R., Sesselberg, T. S., Cantrill, J. A. J. S. s., & medicine. (2005). Health information-seeking behaviour in adolescence: the place of the internet. 60(7), 1467-1478.
    Gray, R., Greenberg, M., Fitch, M., Sawka, C., Hampson, A., Labrecque, M., & Moore, B. (1998). Information needs of women with metastatic breast cancer. Cancer prevention & control: CPC= Prevention & controle en cancerologie: PCC, 2(2), 57-62.
    Hibbard, J. H., Slovic, P., & Jewett, J. J. (1997). Informing consumer decisions in health care: implications from decision‐making research. The Milbank Quarterly, 75(3), 395-414.
    Hoffman, R. M., Lewis, C. L., Pignone, M. P., Couper, M. P., Barry, M. J., Elmore, J. G., Levin, C. A., Van Hoewyk, J., & Zikmund-Fisher, B. J. (2010). Decision-making processes for breast, colorectal, and prostate cancer screening: the DECISIONS survey. Medical Decision Making, 30(5_suppl), 53-64.
    Jamali, H. R., & Shahbaztabar, P. (2017). The effects of internet filtering on users’ information-seeking behaviour and emotions. Aslib Journal of Information Management, 69(4), 408-425. https://doi.org/10.1108/AJIM-12-2016-0218
    Johansson, K., Holmström, H., Nilsson, I., Ingvar, C., Albertsson, M., & Ekdahl, C. (2003). Breast cancer patients' experiences of lymphoedema. Scandinavian journal of caring sciences, 17(1), 35-42.
    Jones, R., Pearson, J., Cawsey, A., Bental, D., Barrett, A., White, J., White, C., & Gilmour, W. (2006). Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial. Bmj, 332(7547), 942-948.
    Kristjanson, L. J., & Ashcroft, T. (1994). The family's cancer journey: a literature review. Cancer nursing, 17(1), 1-17.
    Kuhlthau, C. C. (1991). Inside the search process: Information seeking from the user's perspective. Journal of the American society for information science, 42(5), 361-371.
    Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer publishing company.
    Leydon, G. M., Boulton, M., Moynihan, C., Jones, A., Mossman, J., Boudioni, M., & McPherson, K. (2000). Cancer patients' information needs and information seeking behaviour: in depth interview study. Bmj, 320(7239), 909-913.
    Livneh, H. (2000). Psychosocial Adaptation to Cancer: The Role of Coping Strategies. Journal of rehabilitation, 66(2).
    National Cancer Institute. (2023). National Cancer Institute. https://www.cancer.gov/publications/dictionaries/cancer-terms/def/second-opinion
    Naveed, M. A., Anwar, M. A. J. L. P., & Practice. (2019). Modeling information anxiety. 2758.
    Nguyen, S. K. A., & Ingledew, P.-A. (2013). Tangled in the Breast Cancer Web: an Evaluation of the Usage of Web-Based Information Resources by Breast Cancer Patients. Journal of Cancer Education, 28(4), 662-668. https://doi.org/10.1007/s13187-013-0509-6
    Oncology, A. S. o. C. (2023). Breast Cancer: Statistics. https://www.cancer.net/cancer-types/breast-cancer/statistics
    Perry, S., Kowalski, T. L., & Chang, C.-H. (2007). Quality of life assessment in women with breast cancer: benefits, acceptability and utilization. Health and Quality of Life Outcomes, 5(1), 24. https://doi.org/10.1186/1477-7525-5-24
    Powell, J., & Clarke, A. J. T. B. J. o. P. (2006). Internet information-seeking in mental health: population survey. 189(3), 273-277.
    Quinn, E. M., Corrigan, M. A., McHugh, S. M., Murphy, D., O’Mullane, J., Hill, A. D. K., & Redmond, H. P. (2012). Breast cancer information on the internet: Analysis of accessibility and accuracy. The Breast, 21(4), 514-517. https://doi.org/https://doi.org/10.1016/j.breast.2012.01.020
    Ribnikar, D., Ribeiro, J., Pinto, D., Sousa, B., Pinto, A., Gomes, E., Moser, E., Cardoso, M., & Cardoso, F. (2015). Breast cancer under age 40: a different approach. Current treatment options in oncology, 16, 1-24.
    Rutten, L. J. F., Arora, N. K., Bakos, A. D., Aziz, N., & Rowland, J. (2005). Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient Education and Counseling, 57(3), 250-261.
    Siegel, R. L., Giaquinto, A. N., & Jemal, A. (2024). Cancer statistics, 2024. CA: A Cancer Journal for Clinicians, 74(1), 12-49. https://doi.org/https://doi.org/10.3322/caac.21820
    Stark, D. P. H., & House, A. (2000). Anxiety in cancer patients. British journal of cancer, 83(10), 1261-1267.
    Steinhilper, L., Geyer, S., & Sperlich, S. (2013). Health behavior change among breast cancer patients. International journal of public health, 58(4), 603-613.
    Wilson, T. D. (1981). On user studies and information needs. Journal of Documentation, 37(1), 3-15.
    Yi, Y. J. (2015). Consumer health information behavior in public libraries: A qualitative study. The Library Quarterly, 85(1), 45-63.
    Zimmerman, M. S. (2021). Health information-seeking behavior in the time of COVID-19: information horizons methodology to decipher source path during a global pandemic. Journal of Documentation, ahead-of-print(ahead-of-print). https://doi.org/10.1108/JD-01-2021-0022

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