簡易檢索 / 詳目顯示

研究生: 邱一
Chiu, Yi
論文名稱: 提早學習獨自面對人生──思覺失調症患者女兒的成長故事
Learning to Face Life Alone at an Early Age: Growth Story of a Schizophrenic Patient's Daughter
指導教授: 田秀蘭
Tien, Hsiu-Lan Shelley
口試委員: 金樹人
Jin, Shuh-Ren
林繼偉
Lin, Chi-Wei
田秀蘭
Tien, Hsiu-Lan Shelley
口試日期: 2021/12/23
學位類別: 碩士
Master
系所名稱: 教育心理與輔導學系碩士在職專班
Department of Educational Psychology and Counseling_Continuing Education Master's Program of Educational Psychology and Counseling
論文出版年: 2021
畢業學年度: 110
語文別: 中文
論文頁數: 105
中文關鍵詞: 自我敘說成長經驗思覺失調症精神疾患家屬
英文關鍵詞: self-narrative, growth experience, schizophrenia, relatives of people with mental illness
研究方法: 敘事分析
DOI URL: http://doi.org/10.6345/NTNU202200214
論文種類: 學術論文
相關次數: 點閱:241下載:0
分享至:
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報
  • 本研究為質性取向的自我敘說研究,以自我敘說文本為主、過往自陳文字紀錄為輔,將研究者的身為思覺失調症患者女兒的成長經驗再次呈現。
    研究程序先以第一人稱的研究參與者視角切入,專注於面對母親罹病的成長經驗,覺察經驗中的感受,並將敘述謄寫成為文本,將記憶中的經驗再現。而後以第三人稱的研究者視角進行文本分析,解構與統整資料,梳理脈絡。最後重構經驗,為家人罹病賦予新的意義,並探討「唯一照顧者」成長經驗造成的影響。
    研究結果主要有三:一、研究參與者在回顧過往經驗的爬梳中,認為「母親罹患思覺失調症」、「遇到高中班導」、「成為教師」為其成長經驗中對自己人生影響最大的三個事件。二、面對家人罹患思覺失調症,「女兒」與「照顧者」的角色協調,以及「過好自己的生活」與「照顧生病的母親」的任務兼顧,對於研究參與者而言都有很大的困難度;但此心理調適經驗使其發現:母親罹患思覺失調症對其而言的意義是學習「抉擇」與「釋懷」的考驗。三、作為思覺失調症病患的唯一照顧者,此成長經驗使研究參與者提早學習到「人生本孤獨」的哲理。
    上述研究結果,望能供醫療、社扶與教育單位參考精障家庭中青少年的處境,以期使該族群得到需要的協助。

    This research is a qualitative oriented self-narrative study, with self-narrative texts as the mainstay, and past self-reporting text records as a supplement, re-presenting the researcher's growth experience as the daughter of a schizophrenic patient.
    The research procedure is first approached from the perspective of the first-person, focusing on the self-experience of facing the mother's illness, perceiving the feelings through the experience, transcribing into text, and allowing the experience to reappear. The text analysis is then carried out from the perspective of the third-person researcher, deconstructs and integrates the data, and then sorts out the context. Finally, the research reconstructs the experience, giving it new meaning, and discusses the impact of such experience as the "only caregiver."
    There are three main results of the study: 1. The research participant believes that "mother suffering from schizophrenia," "encountering high school's home room teacher," and "becoming a teacher" are the three events that have the greatest impact in life. 2. In the face of family members suffering from schizophrenia, taking both the roles of "daughter and caregiver," and the tasks of "living one's own life and caring for sick mother," are extremely difficult to the participant. However, the experience has allowed the participant to realize that the meaning of her mother's illness is a test of learning to choose and let go. 3. As the "only caregiver" for patients with schizophrenia, the growth experience makes the participant learn early that "life is lonely."
    Above research hopes to provide better understanding for medical, family and children institutions to give the right help.

    第一章 緒論 1 第一節 研究動機 2 第二節 研究目的與研究問題 3 第三節 名詞釋義 4 第二章 文獻探討 7 第一節 自我敘說相關文獻 7 第二節 成長經驗相關研究 10 第三節 思覺失調症相關文獻 16 第四節 思覺失調症患者家屬相關研究 22 第三章 研究方法 27 第一節 研究取向 27 第二節 研究參與者 28 第三節 研究工具 29 第四節 研究實施程序 30 第五節 研究資料分析 33 第六節 研究倫理 34 第七節 資料的可信賴度 35 第四章 結果──提早學習獨自面對人生 37 第一節 「我是哪裡人?」──自我認同混淆 38 第二節 根深蒂固的依賴──母親是全世界 39 第三節 老天爺的玩笑──母親罹患思覺失調症 41 第四節 品嚐孤獨──國小後期曾一個人住 43 第五節 震撼教育──國中時母親自殺(未果) 46 第六節 青春狂飆期──與祖母同住 48 第七節 再次相依為命──母親回到身邊 49 第八節 獨自承擔──高中時將母親送醫治療 50 第九節 逐漸靠自己過活──成為家庭唯一收入者 54 第十節 在黑夜中發現燈塔──遇到高中班導 59 第十一節 邁入人生的新階段──成為教師 63 第十二節 打造自己的家──舊屋翻新 67 第五章 發現與討論──人生本孤獨 71 第一節 思覺失調症患者女兒的成長故事 72 第二節 母親罹患思覺失調症代表的意義 74 第三節 「唯一照顧者」成長經驗的影響 79 第四節 反思與建議 83 參考文獻 89 中文部份 89 英文部份 97 附錄 101 附錄1 自我敘說提問 參考資料一 101 附錄2 自我敘說提問 參考資料二 102 附錄3 自我敘說提問 參考資料三 104

    Clandinin, D. J., & Connelly, F. M.(2003):《敘說探究:質性研究中的經驗與故事》(蔡敏玲、余曉雯譯)。心理出版社。(原著出版年:2000)[Clandinin, D. J., & Connelly, F. M. (2003). Narrative inquiry: Experience and story in qualitative research (M.-L. Cai & X.-W. Yu, Trans.). Psychological Publishing. (Original work published 2000)]
    Gilbert, R.(2012):《Bowen家庭系統理論之八大概念:一種思考個人與團體的新方式》(江明賢譯)。臺灣婚姻與家庭輔導學會。(原著出版年:2006)[Gilbert, R. (2012). The eight concepts of Bowen theory: a new way of thinking about the individual and the group (M.-X. Jiang, Trans.). Taiwan Association for Marriage and Family Counseling. (Original work published 2006)]
    Smith, J. A.(主編)(2006):《質性心理學:研究方法的實務指南》(丁興祥、張慈宜、曾寶瑩、王勇智、李文玫譯)。遠流。(原著出版年:2003)[Smith, J. A. (Ed.) (2006). Qualitative psychology: A practical guide to research methods (S.-S. Ting, C.-Y. Zhang, B.-Y. Zeng, Y.-Z. Wang, & W.-M. Li, Trans.). Yuan-Liou Publishing. (Original work published 2003)]
    丁興祥(2012):〈自我敘說研究:一種另類心理學〉。《應用心理研究》,56,15–18。[Ting, S.-S. (2012). Self-narratives as an alternative psychology. Research in Applied Psychology, 56, 15–18.]
    小倉廣(2015):《接受不完美的勇氣:阿德勒100句人生革命》(楊明綺譯)。遠流。(原著出版年:2014)[Ogura, H. (2015). Alfred Adler 100 words to revolutionize your life (M.-Q. Yang, Trans.). Yuan-Liou Publishing. (Original work published 2014)]
    王玉珍、田秀蘭、朱惠瓊、葉寶玲(2011):〈優勢中心取向生涯諮商之諮商歷程與療效內涵探究〉。《教育心理學報》,42,631–653。[Wang, Y.-C., Tien, H.-L. S., Chu, H.-C., & Yeh, P.-L. (2011). The process of strength-based career counseling and the content of its therapeutic efficacy for dual-career women. Bulletin of Educational Psychology, 42, 631–653.] https://doi.org/10.6251/BEP.20100310
    王育慧(2016):《踏不出家門的專業──從「咱們」關係初探精神失序者(思覺失調症)的照顧經驗》(未出版碩士論文),國立陽明大學。[Wang, Y.-H. (2016). Unlicensed specialist — a study on we-ness caring experience of people with mental disorder (schizophrenia) (Unpublished master's thesis). National Yang-Ming University.]
    王覺興(2002):《單親家庭子女生涯發展與抉擇歷程之質性研究》(未出版碩士論文),國立成功大學。[Wang, C.-H. (2002). A qualitative research of single-parent children's career development and career making process (Unpublished master's thesis). National Cheng Kung University.]
    王鐘和、吳秀碧、陳慶福、蕭文、楊瑞珠、林秀娟、李玉卿(2000):《單親家庭之教育與輔導》。心理出版社。[Wang, Z.-H., Wu, X.-B., Chen, Q.-F., Xiao, W., Yang, R.-Z., Lin, X.-J., & Li, Y.-Q. (2000). Education and counseling for single-parent families. Psychological Publishing.]
    民法(2021年1月20日)修正公布。https://law.moj.gov.tw/LawClass/LawAll.aspx?pcode=B0000001 [Civil Code. (2021, January 20). Amendment to Articles. https://law.moj.gov.tw/LawClass/LawAll.aspx?pcode=B0000001]
    托利(2020):《思覺失調症完全手冊:給病患、家屬及助人者的實用指南(第七版)》(丁凡譯)。心靈工坊。(原著出版年:2019)[Torrey, E. F. (2020). Surviving schizophrenia: a family manual (F. Ding, Trans.; 7th ed.). PsyGarden Publishing. (Original work published 2019)]
    何粵東(2005):〈敘說研究方法論初探〉。《應用心理研究》,25,55–72。[Ho, Y.-T. (2005). A probe on the methodology of narrative inquiry. Research in Applied Psychology, 25, 55–72.]
    吳逸萱(2006):《家庭危機與轉機:以青少年心理健康問題和偏差行為為例》(未出版碩士論文),靜宜大學。[Wu, I.-H. (2006). Family causes and the moderation for adolescent mental health problems and deviant behaviors (Unpublished master's thesis). Providence University.]
    吳靜樺(1994):《離婚家庭青少年期子女生活適應之分析研究》(未出版碩士論文),東吳大學。[Wu, C.-H. (1994). The adjustment of adolescent of divorcing family (Unpublished master's thesis). Soochow University.]
    李文玫(2017):〈走一趟生命文本的反思旅程:從文本解讀的觀點再看敘說心理研究〉。《生命敘說與心理傳記學》,5,1–23。[Li, W.-M. (2017). Walking through the reflection journey of life "text": from the view of text interpretation to narrative psychology research. Life Narrative and Psychobiography, 5, 1–23.] https://doi.org/10.6512/lnp.201712_5.0001
    亞隆(2003):《存在心理治療(下)──自由、孤獨、無意義》(易之新譯)。張老師文化。(原著出版年:1980)[Yalom, I. D. (2003). Existential psychotherapy (Z.-X. Yi, Trans.). Teacher Chang Foundation Publishing. (Original work published 1980)]
    亞隆(2020):《亞隆文選》(鄧伯宸、徐大成譯)。張老師文化。(原著出版年:1998)[Yalom, I. D. (2020). The Yalom reader: selections from the work of a master therapist and storyteller (B.-C. Deng & D.-C. Xu, Trans.). Teacher Chang Foundation Publishing. (Original work published 1998)]
    周慕姿(2014):《「我,有那麼好嗎?」──從早年成長經驗脈絡,理解具單親家庭經驗獨生子女形成「假冒者現象」之歷程》(未出版碩士論文),國立臺北教育大學。[Chou, M.-T. (2014). The process of developing imposter phenomenon in the only child of single-parent family based on early childhood experiences (Unpublished master's thesis). National Taipei University of Education.]
    林俊宏、王思峰、劉兆明(2010):〈從「悶谷」裡創踏出一道「韌徑」:以建教生實習生命故事為例〉。《應用心理研究》,47,89–116。[Lin, C.-H., Wang, S.-F., & Liu, C.-M. (2010). A pathway towards resilience: A narrative approach. Research in Applied Psychology, 47, 89–116.]
    林梅蓉(2004):《國小單親家庭學童學校生活適應之研究》(未出版碩士論文),國立臺東大學。[Lin, M.-J. (2004). A study on the school life adjustment of the elementary school children from single-parent family (Unpublished master's thesis). National Taitung University.]
    洪瑞斌、陳筱婷、莊騏嘉(2012):〈自我敘說研究中的真實與真理:兼論自我敘說研究之品質參照標準〉。《應用心理研究》,56,19–53。[Hung, J.-P., Chen, H.-T., & Chuang, C.-C. (2012). The reality and truth of self-narrative research: A discussion on quality criterion. Research in Applied Psychology, 56, 19–53.]
    美國精神醫學學會(2014):《DSM-5精神疾病診斷準則手冊》(臺灣精神醫學會譯)。合記圖書。(原著出版年:2013)[American Psychiatric Association. (2014). Diagnostic and statistical manual of mental disorders (Taiwanese Society of Psychiatry, Trans.; 5th ed.). Ho-Chi Publishing. (Original work published 2013)]
    翁開誠(1997):〈同理心開展的再出發──成人之美的藝術〉。《輔仁學誌—文學院之部》,26,261–274。[Wong, K.-C. (1997). The restart of empathy development — the art of cheng jen chih mei. Fu Jen Studies — Wen Xue Yuan, 26, 261–274.]
    高強華(2000):〈重要他人〉。國家教育研究院。http://terms.naer.edu.tw/detail/1307960/ [Gao, Q.-H. (2000). Significant others. National Academy for Educational Research. http://terms.naer.edu.tw/detail/1307960/]
    國立臺灣大學醫學院附設醫院精神醫學部(2015):〈身體症狀與精神健康〉。衛生福利部。https://dep.mohw.gov.tw/domhaoh/cp-428-1360-107.html [Department of Psychiatry - National Taiwan University Hospital. (2015). Physical symptoms and mental health. Ministry of Health and Welfare. https://dep.mohw.gov.tw/domhaoh/cp-428-1360-107.html]
    張怡貞(1998):《國小學童獨生子女與非獨生子女同儕關係及其相關因素研究》(未出版碩士論文),國立臺東師範學院。[Chang, Y.-C. (1998). A study of peer relationship and its correlates between only children and non-only children (Unpublished master's thesis). National Taitung University Teachers College.]
    張英陣、彭淑華(1996):〈從優勢觀點論單親家庭〉。《東吳社會工作學報》,2,227–271。[Chang, Y.-C., & Pong, S.-H. (1996). Discussion about single-parent family from strength-centered view. Soochow Journal of Social Work, 2, 227–271.]
    張貴傑(2002):《變,生命歷程的實踐與建構:一個生命體自我成長經驗的探究與反思》(未出版博士論文),國立彰化師範大學。[Chang, K.-C. (2002). Change-The construct and praxis of life: The study of an individual's self-growth experiences (Unpublished doctoral dissertation). National Changhua University of Education.]
    陳大申(2014):〈精神分裂症正名為「思覺失調症」新一代抗精神病藥物有助生活品質〉。KingNet國家網路醫藥。https://www.kingnet.com.tw/news/single?newId=34130 [Chen, D.-S. (2014). The translation of schizophrenia is renamed, and the new antipsychotic drugs is helpful. KingNet National Network Medicine. https://www.kingnet.com.tw/news/single?newId=34130]
    陳賢佳(1999):《女性精神分裂症病患其子女之成長經驗》(未出版碩士論文),國立臺灣大學。[Chen, H.-C. (1999). The growing experience of offspring with schizophrenic mother (Unpublished master's thesis). National Taiwan University.]
    陶蕃瀛(2004):〈行動研究:一種增強權能的助人工作方法〉。《應用心理研究》,23,33–48。[Tao, F.-Y. (2004). An empowering way of doing research and helping people. Research in Applied Psychology, 23, 33–48.]
    鈕文英(2020):《質性研究方法與論文寫作(三版)》。雙葉書廊。[Niew, W.-I. (2020). Qualitative research methods and paper writing (3rd ed.). Yeh Yeh Book Gallery.]
    黃三原(2021):〈思覺失調症〉。三軍總醫院。https://wwwv.tsgh.ndmctsgh.edu.tw/unit/10058/17019 [Huang, S.-Y. (2021). Schizophrenia. Tri-Services General Hospital. https://wwwv.tsgh.ndmctsgh.edu.tw/unit/10058/17019]
    黃冠錦(2017):《思覺失調症患者照顧者之照顧歷程敘事研究》(未出版碩士論文),高雄醫學大學。[Huang, K.-C. (2017). The lived-experience of caregivers of patients with schizophrenia: A narrative study (Unpublished master's thesis). Kaohsiung Medical University.]
    楊佳穎(2008):《大學生父母教養方式、親職化與心理適應之相關研究》(未出版碩士論文),國立屏東教育大學。[Yang, C.-Y. (2008). The correlation among parental rearing style, parentification and mental adaptation of the college students (Unpublished master's thesis). National Pingtung University of Education.]
    葛拉特、法拉昂、莊明哲(2020):《思覺失調症:你應該知道的事實(第四版)》(廖婉如譯)。心靈工坊。(原著出版年:2019)[Glatt, S. J., Faraone, S. V., & Tsuang, M.-T. (2020). Schizophrenia: The facts (W.-R. Liao, Trans.; 4th ed.). PsyGarden Publishing. (Original work published 2019)]
    熊曣(2018):〈「自我敘說」研究的信與美~從一個論文指導者與助人工作者的觀點敘說〉。《國教新知》,65,103–124。[Hsiung, Y. (2018). The belief and beauty of the self narrative research — from the viewpoint of the role of both a master thesis instructor and a counseling professional helper. The Elementary Education Journal, 65, 103–124.] https://doi.org/10.6701/TEEJ.201803_65(1).0007
    劉智民(2016):〈精神分裂還是思覺失調?精神醫學與神經科學的交會〉。臺灣醫學會。[Liu, C.-M. (2016). Which translation of schizophrenia would be right? The intersection of psychiatry and neuroscience. Taiwan Medical Association.] http://www.fma.org.tw/2016/bio-4.html
    蔡佳靜(2002):《國小學童出生序與社會興趣、自我概念之相關研究》(未出版碩士論文),國立臺北師範學院。[Tsai, C.-C. (2002). A study on the correlation among elementary school students' birth order, social interest, and self-concept (Unpublished master's thesis). National Taipei University of Education.]
    衛生福利部(2017):〈中文版ICD-10-CM〉。https://www.nhi.gov.tw/Content_List.aspx?n=20443564F26622DC&topn=23C660CAACAA159D [Ministry of Health and Welfare. (2017). The ICD-10 clinical modification, Chinese version. https://www.nhi.gov.tw/Content_List.aspx?n=20443564F26622DC&topn=23C660CAACAA159D]
    衛生福利部(2020a):〈國人全民健保就醫疾病資訊〉。https://www.nhi.gov.tw/Content_List.aspx?n=D529CAC4D8F8E77B&topn=23C660CAACAA159D [Ministry of Health and Welfare. (2020a). National health insurance medical disease information. https://www.nhi.gov.tw/Content_List.aspx?n=D529CAC4D8F8E77B&topn=23C660CAACAA159D]
    衛生福利部(2020b):〈精神疾病患者門、住診人數統計〉。https://dep.mohw.gov.tw/DOS/cp-1720-7337-113.html [Ministry of Health and Welfare. (2020b). Statistics on outpatient and inpatient numbers of mental illness. https://dep.mohw.gov.tw/DOS/cp-1720-7337-113.html]
    駱惠旋(2017):《解開共構命運:以分離──個體化回觀母女關係之自我敘說研究》(未出版碩士論文),國立臺灣師範大學。[Loh, H.-S. (2017). Freed from the predestination: A self-narrative of retrospection mother-daughter relationship in aspect of separation-individuation (Unpublished master's thesis). National Taiwan Normal University.]
    襲充文(2012):〈心像〉。國家教育研究院。https://terms.naer.edu.tw/detail/1453822/ [Shyi, C.-W. G. (2012). Mental imagery. National Academy for Educational Research. https://terms.naer.edu.tw/detail/1453822/]
    Casselman, S. E. (1991). The impostor phenomenon in medical students: Personality correlates and developmental issues [Unpublished doctoral dissertation]. Old Dominion University.
    Castro, D. M., Jones, R. A., & Mirsalimi, H. (2004). Parentification and the impostor phenomenon: An empirical investigation. American Journal of Family Therapy, 32, 205–216. https://doi.org/10.1080/01926180490425676
    Clance, P. R. & O'Toole, M. A. (1987). The imposter phenomenon: An internal barrier to empowerment and achievement. Women & Therapy, 6, 51–64. https://doi.org/10.1300/J015V06N03_05
    Clance, P. R. (1985). The impostor phenomenon: Overcoming the fear that haunts your success. Peachtree Publishers.
    Denzin, N. K. (1989). Interpretive biography. SAGE Publications. https://doi.org/10.4135/9781412984584
    Ellis, C., & Bochner, A. P. (2000). Autoethnography, personal narrative, reflexivity: Researcher as subject. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 733–768). SAGE Publications.
    Gergen, K. S. (1973). Social psychology as history. Journal of Personality and Social Psychology, 26, 309–320. https://doi.org/10.1037/h0034436
    Hood, J. (2020). The benefits and importance of a support system. Highland Springs Specialty Clinic. https://highlandspringsclinic.org/blog/the-benefits-and-importance-of-a-support-system/
    Imes, S. A., & Clance, P. R. (1984). Treatment of the impostor phenomenon in high achieving women. In C. Brody (Ed.), Women working with women (pp. 75–88). Snapfinger Publishing.
    Jurkovic, G. J. (1997). Lost childhoods: The plight of the parentified child. Routledge.
    Lewis, R. (2020). Erikson's 8 stages of psychosocial development, explained for parents. Healthline. https://www.healthline.com/health/parenting/erikson-stages
    McCormack, C. (2000). From interview transcript to interpretive story: Part 1 — viewing the transcript through multiple lenses. Field Methods, 12, 282–297. https://doi.org/10.1177/1525822X0001200402
    Neisser, U. (1994). Self-narratives: True and false. Cambridge University Press. https://doi.org/10.1017/CBO9780511752858.003
    Polkinghorne, D. E. (1988). Narrative knowing and the human sciences. State University of New York Press.
    Riessman, C. K. (1993). Narrative analysis. SAGE Publications.
    Sarbin, T. R. (Ed.) (1986). Narrative psychology: The storied nature of human conduct. Praeger Publishers.

    無法下載圖示 本全文未授權公開
    QR CODE