研究生: |
林思汎 Lin, Szu-Fan |
---|---|
論文名稱: |
「挑戰吧!」提升智能障礙青年自我決策行為之展現-以線上會議為例 “I can do it!”A Qualitative Exploration on Self-determinated Behavior for Young Adults with Intellectual Disability during Online Conferences |
指導教授: |
邱春瑜
Chiu, Chun-Yu |
口試委員: |
郭惠瑜
Kuo, Hui-Yu 胡心慈 Hu, Shin-Tzu 邱春瑜 Chiu, Chun-Yu |
口試日期: | 2022/07/28 |
學位類別: |
碩士 Master |
系所名稱: |
特殊教育學系 Department of Special Education |
論文出版年: | 2023 |
畢業學年度: | 111 |
語文別: | 中文 |
論文頁數: | 94 |
中文關鍵詞: | 智能障礙青年 、自我決策 、自我掌握理論 、專業支持者 、線上會議 |
英文關鍵詞: | People with intellectual disability, self-determination, Causal Agency Theory, supporters |
研究方法: | 質性研究 |
DOI URL: | http://doi.org/10.6345/NTNU202301172 |
論文種類: | 學術論文 |
相關次數: | 點閱:93 下載:13 |
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具備自我決策行為的智能障礙者能成為自己生命中的主人。本研究依據自我掌控理論(Causal Agency Theory)分析智能障礙者(簡稱智青)在線上會議中展現之自我決策行為,包含意識決策行為(Volitional action)、行動控制信念(Action-control beliefs)和能動行為(Agentic action)。本研究旨在探討(1)智青在線上會議中展現的自我決策行為以及(2)智青對於線上會議中所受支持的看法,並完成7次線上會議觀察、會議前後半結構訪談5位智青與1位專業支持者(共11人次)。研究者透過Nvivo質性統計軟體編碼、分析,並邀請一位同儕審查者確認編碼過程的客觀性,研究結果如下:
一、智能障礙青年在線上會議中展現的自我決策行為
本研究中五位智青展現出不同樣態的意識決策行為、行動控制意念和能動行為。五位特質相差甚大的智青組成研究團隊,包含責任心強大的雅雯、適時提供協助的怡君、觀察他人需求的昱誠、禮貌提問的亞魁和探索自我需求的哲豪。過往正向經驗與彼此熟悉度成為他們參與研究的強烈動機,並優先選擇以一對一方式進行討論。團隊中三位智青在三項行為特徵都有一致較明確之展現,內在動機與過往正向經驗息息相關,且意識決策行為、行動控制意念和能動行為呈現一致偏高的智青,整體上展現出較多自我決策行為。
二、智能障礙青年在線上會議中對於所受支持的看法
本研究發現智青在線上會議中所受支持來源以及策略各有二部分。支持來源方面,智青遇到困難時傾向尋求智青支持者協助,認為同儕間有熟悉感、用語相近,解決問題的同時更維持良好會議氛圍,研究更發現智青支持者會觀察智青的認知狀態,提供不同層次協助;而專業支持者大量提問和確認雖能促進表達,卻也造成智青的心理壓力,影響團體氣氛。支持策略方面,智青重視預先準備、依照障礙特質提供需求以及將訊息視覺化統整,透過會議主持人事前提供電子或紙本資料有助於會前先連結舊經驗,使參與成員能預先思考可能面臨的狀況,減少臨場反應所花費的時間。
智青的自我決策行為需要時間與經驗累積,形成正向經驗-動機-參與的循環。會議主辦者需要提供高品質的支持服務,而實務工作者及智青皆可考量會議中使用的支持策略、專業支持者培訓以及參與成員間的夥伴關係。未來學術領域可進一步探討智青自我決策萌芽的契機與進行支持服務相關實證研究,以期創造更有利於智青參與的研究設計,期能彰顯身心障礙者權利公約中「Nothing us, without us!」之精神。
People with intellectual disabilities(PwIDs) who display self-determined behaviors can become masters of their lives. Grounded in the Causal Agency Theory(CAT), this study aims to explore the self-determined behaviors of 5 PwIDs in a series of online meetings. Under the CAT, self-determined behaviors include volitional action, action-control beliefs, and agentic action. In addition, the researcher seeks to understand the PwIDs’ perspectives on the support they received during the online meeting. During the study phase, the researcher conducted 11 in-depth interviews with five PwIDs and one professional before and after the 7-session online meetings and coded and analyzed qualitative data by Nvivo. The researcher also invited a peer-independent coder to debrief about the results. The results indicated two significant findings:
A. The PwIDs show diverse volitional action, action-control beliefs, and agentic action during online meetings. The researcher identified different characteristics from the five PwIDs: Ya-Wen was proven to be a responsible person; Yee-Chwan showed his strengths as a timely helper; Yu-Ching was considered observant of other people's needs; Ya-Kui raised questions politely; and Chee-Ho who explored his own needs freely. Their past experiences participating in self-advocate activities and familiarity with this group strongly motivated them. Consequently, three PwIDs with more experience demonstrated more consistent self-determined behaviors. All participants also valued one-on-one conversation in addition to the group discussion.
B. The PwIDs identified the sources of support and strategies during online meetings. Regarding the sources of support, the PwIDs tended to seek help from a peer when they struggled with challenges. They preferred talking to their kind because of the relationship and the same language. They also indicated receiving different levels of assistance through supporting professionals (i.e., a social worker) who facilitated by prompting and re-confirming but sometimes posed stress to the PwIDs. Regarding investing strategies, the PwIDs identified advanced notice, individualized accommodation, and visual cues as the three most helpful strategies. Especially in the context of the online meeting, it was beneficial to have electronic or paper information in advance. They also appreciated having the content adapted in a way that helped connect with their past experiences for PwIDs. Those strategies also reflected perfect with characteristics from intellectual disability (e.g., taking a long time to process information).
In conclusion, PwIDs need to have more opportunities to develop self-determined behaviors. The positive cycle includes positive experience, motivation, and participation. Self-advocates and supporting personnel should provide high-quality support. To achieve this goal, personal preparation should consider effective support strategies and rapport-building skills. On the other hand, this study calls for further investigations on (a) developing self-determined behaviors and (b) evidence-based strategies supporting self-determined behaviors from PwIDs. Finally, in the spirit of the Convention on the Rights of Persons with Disabilities, "Nothing us without us!” the research field shall encourage inclusive research design.
三明治工有限公司(2018)。民國107年地方公職人員選舉及全國性公民投票易讀版投票指南手冊。中央選舉委員會。
三明治工有限公司(2020)。一起去國家兩廳院看表演。國家兩廳院。
中央選舉委員會(2019)。第15任總統副總統及第10屆立法委員選舉易讀版投票指南手冊。中央選舉委員會。
王偉欣(2019)。多媒體提示系統增進一位國中智能障礙學生休閒活動的自我決策表現之行動研究。國立臺南大學特殊教育學系重度障礙研究所。
李孟儒(2016)。應用直接教學模式設計自我決策課程對國小身心障礙學生之學習成效研究。國立臺灣師範大學特殊教育所。
林惠芳、翁亞寧、高雅郁(2018)。 易讀運動:心智障礙者邁向自立生活的第一步 。 社區發展季刊,164, 78-84。
孫淑柔、吳雅萍、陳明聰、莊妙芬、盧台華、林純真、陳麗圓、詹孟琦、吳配芳、何素華(2016)。智能障礙。華騰文化。
國立故宮博物院、台北市立陽明教養院、中華民國智能障礙者家長協會(2019)。生活樂陶陶:故宮易讀版導覽手冊陶瓷器篇。國立故宮博物院。
張恒豪、顏詩耕(2011)。 從慈善邁向權利:臺灣身心障礙福利的發展與挑戰 。 社區發展季刊,133, 402-416。
張恒豪、周月清、陳俊賢、陳重安 (2020)。 誰代表障礙者?障礙者代表的政府參與及其在公民權上的意義 。 臺灣民主季刊,17, 95-136。
許丹丹(2020)。這是我的工作:智能障礙大學畢業生自我決策歷程之個案研究。國立臺灣師範大學特殊教育研究所。
郭惠瑜 (2022)。「沒有我的參與,不要為我做決定」:心智能障礙者參與易讀服務之意涵與對社工角色之挑戰 。 社區發展季刊, 57-71。
陳怡穎(2015)。消費者教育課程教學對國小智能障礙學生自我決策之行動研究。人文藝術學院國民小學教師在職進修公民與社會教學碩士學位班。
陳淑慧(2006)。國小輕度智能障礙學生自我決策歷程之探究。國立台中教育大學國民教育學系。
陳曉春(2009)。自我決策教學方案對國小智能障礙學生的教學成效。國立臺灣師範大學特殊教育學系。
黃文慧 (2010)。身心障礙者與自我決策。特殊教育季刊, 11-20。
黃盈瑄(2011)。國中身心障礙學生自我決策及相關因素之調查研究。臺北教育大學特殊教育學系碩士班。
黃莓富(2017)。繪本教學對綜合職能科學生自我決策成效之研究。國立彰化師範大學特殊教育學系輕度障礙教育碩士班。
趙本強 (2011)。 學齡階段身心障礙學生自我決策量表之編制 。特殊教育學報, 101-134。
聯合國(2014)。 身心障礙者權利公約。 聯合國。
鈕文英(2020)。質性研究方法與論文寫作(三版)。雙葉書廊。
Biegun, D., Peterson, Y., McNaught, J., & Sutterfield, C. (2020). Including Student Voice in IEP Meetings Through Use of Assistive Technology. TEACHING Exceptional Children, 52(5), 348-350. https://doi.org/10.1177/0040059920920148
Bigby, C., Frawley, P., & Ramcharan, P. (2014a). Conceptualizing inclusive research with people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3-12. https://doi.org/10.1111/jar.12083
Bigby, C., Frawley, P., & Ramcharan, P. (2014b). A collaborative group method of inclusive research. Journal of Applied Research in Intellectual Disabilities, 27(1), 54-64. https://doi.org/10.1111/jar.12082
Chinn, D., & Homeyard, C. (2017). Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review. Health Expect, 20(6), 1189-1200. https://doi.org/10.1111/hex.12520
Chou, Y.-C., Wehmeyer, M. L., Palmer, S. B., & Lee, J. (2016). Comparisons of self-determination among students with autism, intellectual disability, and learning disabilities: A aultivariate analysis. Focus on Autism and Other Developmental Disabilities, 32(2), 124-132. https://doi.org/10.1177/1088357615625059
Davidson, G., Kelly, B., Macdonald, G., Rizzo, M., Lombard, L., Abogunrin, O., Clift-Matthews, V., & Martin, A. (2015). Supported decision making: a review of the international literature. Int J Law Psychiatry, 38, 61-67. https://doi.org/10.1016/j.ijlp.2015.01.008
Dee-Price, B.-J. M. (2020). Social researchers and participants with intellectual disabilities and complex communication (access) needs. Whose capacity? Whose competence? Research and Practice in Intellectual and Developmental Disabilities, 7(2), 132-143. https://doi.org/10.1080/23297018.2020.1788418
Di Lorito, C., Bosco, A., Birt, L., & Hassiotis, A. (2018). Co‐research with adults with intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), 669-686. https://doi.org/10.1111/jar.12435
Fuchs, L. S., Fuchs, D., Phillips, N. B., Hamlett, C. L., & Earns, K. (2019). Acquisition and Transfer Effects of Classwide Peer-Assisted Learning Strategies in Mathematics for Students with Varying Learning Histories. School Psychology Review, 24(4), 604-620. https://doi.org/10.1080/02796015.1995.12085790
Garrels, V., & Palmer, S. B. (2019). Student-directed learning: A catalyst for academic achievement and self-determination for students with intellectual disability. Journal of Intellect Disabilities, 24(4), 459-473. https://doi.org/10.1177/1744629519840526
Johnson, K., & Walmsley, J. (2003). Inclusive research with people with learning disabilities: Past, present and futures. Jessica Kingsley Publishers. 1843100614
Jones, K. E., Ben-David, S., & Hole, R. (2020). Are individuals with intellectual and developmental disabilities included in research? A review of the literature. Research and Practice in Intellectual and Developmental Disabilities, 7(2), 99-119. https://doi.org/10.1080/23297018.2019.1627571
Landmark, L. J., & Zhang, D. (2013). Compliance and practices in transition planning: A review of individualized education program documents. Remedial and Special Education, 34(2), 113-125. https://doi.org/10.1177/0741932511431831
Lane, K. L., Carter, E. W., & Sisco, L. (2012). Paraprofessional involvement in self-determination instruction for students with high-incidence disabilities. Exceptional Children, 78(2), 237-251. https://doi.org/http://dx.doi.org/10.1177/001440291207800206
Luckasson, R., Borthwick-Duffy, S., Buntinx, W. H., Coulter, D. L., Craig, E. M. P., Reeve, A., Schalock, R. L., Snell, M. E., Spitalnik, D. M., & Spreat, S. (2002). Mental retardation: Definition, classification, and systems of supports. American Association on Mental Retardation. 0940898810
Martins, C. D. S., Willner, P., Brown, A., & Jenkins, R. (2011). Knowledge of advocacy options within services for people with learning disabilities. Journal of Applied Research in Intellectual Disabilities, 24(3), 274-279. https://doi.org/https://doi.org/10.1111/j.1468-3148.2010.00608.x
Moore, T. F., & Hollett, J. (2003). Giving voice to persons living with dementia: The researcher’s opportunities and challenges. Nursing science quarterly, 16(2), 163-167. https://doi.org/https://doi.org/10.1177/0894318403251793251793
Palmer, S. B. (2010). Self-determination: A life-span perspective. Focus on exceptional children, 42(6), 1-16. https://www.proquest.com/scholarly-journals/self-determination-life-span-perspective/docview/807668556/se-2
Raby, C. L., & Madden, J. R. (2021). Moving academic conferences online: Aids and barriers to delegate participation. Academic Practice in Ecology & Evolution, 11(8), 3646-3655. https://doi.org/http://dx.doi.org/10.1002/ece3.7376
Rillotta, F., Arthur, J., Hutchinson, C., & Raghavendra, P. (2018). Inclusive university experience in Australia: Perspectives of students with intellectual disability and their mentors. Journal of Intellectual Disabilities, 24(1), 102-117. https://doi.org/10.1177/1744629518769421
Schalock, R. L., Luckasson, R., & Tassé, M. J. (2021). Intellectual disability: Definition, classification, and systems of supports. American Association on Intellectual and Developmental Disabilities. 9780998398365
Schwartz, A. E., Kramer, J. M., Cohn, E. S., & McDonald, K. E. (2020). “That felt like real engagement”: Fostering and maintaining inclusive research collaborations with individuals with intellectual disability. Qualitative health research, 30(2), 236-249. https://doi.org/http://dx.doi.org/10.1177/1049732319869620
Shogren, K. A., Burke, K. M., Anderson, M. H., Antosh, A. A., Wehmeyer, M. L., LaPlante, T., & Shaw, L. A. (2018). Evaluating the differential impact of interventions to promote self-determination and goal attainment for transition-age youth with intellectual disability. Research and practice for persons with severe disabilities, 43(3), 165-180. https://doi.org/https://doi.org/10.1177/1540796918779775
Shogren, K. A., Ward, M. J., Inge, K. J., & Wehman, P. (2018). Promoting and enhancing self-determination to improve the post-school outcomes of people with disabilities. Journal of Vocational Rehabilitation, 48(2), 187-196. https://doi.org/10.3233/jvr-180935
Shogren, K. A., Wehmeyer, M. L., Palmer, S. B., Forber-Pratt, A. J., Little, T. J., & Lopez, S. (2015). Causal Agency Theory: Reconceptualizing a Functional Model of Self-Determination. Education training in autism and developmental disabilities, 50, 251-263. https://doi.org/http://dx.doi.org/10.1177/1049732319869620
Shogren, K. A., Wehmeyer, M. L., Palmer, S. B., Rifenbark, G. G., & Little, T. D. (2013). Relationships between self-determination and postschool outcomes for youth with disabilities. The Journal of Special Education, 48(4), 256-267. https://doi.org/10.1177/0022466913489733
Wehmeyer, M., & Schwar, M. (1996). The relationship between selfdetermination and quality of life for adults with mental retardation. Education and Training in Mental Retardation and Developmental Disabilities,33(1), 3-12. https://www.jstor.org/stable/23879037
Wehmeyer, M. L. (1992a). Self-determination and the education of students with mental retardation. Education Training in mental Retardation, 27(4), 302-314. https://www.jstor.org/stable/23878861
Wehmeyer, M. L., & Kelchner, K. (1995). The Arc's self-determination scale (adolescent version). Arc of the United States.
Wehmeyer, M. L., & Palmer, S. B. (2003). Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education and training in developmental disabilities, 38(2), 131-144. https://www.jstor.org/stable/23879591
Wehmeyer, M. L., Shogren, K. A., Little, T. D., & Lopez, S. J. (2017). Development of self-determination through the life-course. Springer. 9402410422
Weller, S. C., Vickers, B., Bernard, H. R., Blackburn, A. M., Borgatti, S., Gravlee, C. C., & Johnson, J. C. (2018). Open-ended interview questions and saturation. PLoS ONE, 13(6), e0198606. https://doi.org/https://doi.org/ 10.1371/journal.pone.0198606
Werner, S. (2012). Individuals with intellectual disabilities: a review of the literature on decision-making since the Convention on the Rights of People with Disabilities (CRPD). Public Health Reviews, 34(2), 1-27. https://doi.org/http://dx.doi.org/10.1007/BF03391682