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研究生: 黃明雄
論文名稱: 我不笨,我是他媽媽~一位智能障礙女性的育兒經驗敘說
指導教授: 胡心慈
學位類別: 碩士
Master
系所名稱: 特殊教育學系
Department of Special Education
論文出版年: 2010
畢業學年度: 98
語文別: 中文
論文頁數: 94
中文關鍵詞: 智能障礙母親育兒經驗敘說研究質性研究
英文關鍵詞: intellectual disabilities, mother, the experience of raising and teaching children, narrative study, qualitative study
論文種類: 學術論文
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  • 本研究以一位領有智能障礙手冊並育有子女的女性為研究對象,並邀請另外兩位重要關係人一同參與研究。採取敘事研究方法,主要透過訪談,佐以觀察,探究智能障礙女性的育兒經驗。
    經過資料蒐集、分析與詮釋,研究者先以縱向的連續性敘說,依序呈現研究對象十八年來的歷程,再以橫向的主要境遇描寫,描繪發生在她身上,那些跨階段,且影響著她育兒經驗的關鍵要素。
    本研究的發現如下:
    一、研究對象在婆家及先生身上鮮少得到支持,甚至成為其壓力來源
    二、研究對象在教養能力及家庭經濟上遇到顯著的困難
    三、研究對象常遭受社會大眾的排斥或異樣眼光
    四、因為教養能力的欠缺,面對孩子的行為問題,研究對象只能以蠻力制止, 進而造成其身體上的傷害
    五、研究對象承受了來自孩子、先生、經濟及異樣眼光的龐大壓力
    六、研究對象雖遭遇諸多困境,但其母親則是一股強大而重要的支持力量
    七、除了母親的支持外,研究對象也曾零星地受到他人的支援或社會資源的援助

    總體而言,研究對象在育兒的經驗上是苦多於樂,她需要更多自我決定的機會、更多的陪伴與支持、更多的專業協助、更多的接納與尊重,亦即從生態的角度提供其所需的援助,讓這條育兒的路走的更加順暢。

    This study described one study case, a mother, who has been
    diagnosed with an intellectual disability. In addition, the statements of two interviewees crucially important to this woman were involved. This study conducted the method of a narrative study and it explored how a woman with an intellectual disability raised her child mainly through
    interviewing and partly through observing.
    Through gathering, analyzing and explaining the information, the researcher presented vertically the process of the study case's life over these eighteen years in sequence by using a continue narrative way.Subsequently, the researcher used a horizontal description of main events
    to present those key factors which happened to the study case in the different stages of her life had a great impact on how she raised and taught her child.
    The finding of this study included: (a) the study case eldom
    obtained supports from her husband as well as the husband's family; and further, she almost weighed down by their stress; (b) the study case had apparent difficulties in her capability in raising as well as teaching the child and she was in financial difficulties; (c) the study case often
    suffered exclusion and unfair judgment from the society;(d) because the study case lacked capability of raising as well as teaching her child, she could only use physical strength to put a stop to her child's behavior problems; however, this approach caused physical injury to herself; (e) the study case endured high stress from her child, husband, family economy and the society; (f) although the study case was in such a difficult position, fortunately, she obtained a strong as well as principal support from her mother; besides, she intermittently obtained some people's assistance and social aids.
    In conclusion, there were more bitters than sweets to the study case when she raised and taught her child. She needed more opportunities to self-determine, more company as well as supports, more professional assistance, and more acceptance as well as respect, that is, she needed
    more necessary aids from an ecological point in order to make her raise her child more successfully.

    第一章 故事的發現………………………………………… 1 第一節 一齣虛構電影的感動……………………………… 1 第二節 一段真實故事的衝擊……………………………… 3 第三節 一個學術探討的缺憾……………………………… 4 第四節 一篇等待發掘的故事……………………………… 6 第二章 故事的背後………………………………………… 8 第一節 他們的天賦權利…………………………………… 8 第二節 他們的教養能力…………………………………… 11 第三節 他們的真實困境…………………………………… 13 第四節 他們的支持系統…………………………………… 16 第三章 故事的建構………………………………………… 20 第一節 用敘說描繪經驗…………………………………… 20 第二節 我眼中的她(他)………………………………… 22 第三節 怯生生的初試……………………………………… 24 第四節 研究參與者………………………………………… 32 第五節 我如何編寫一個故事……………………………… 34 第四章 這段屬於她的故事………………………………… 40 第一節 一路來的跌跌撞撞………………………………… 40 第二節 坎坷路上的荊棘與甘泉…………………………… 54 第五章 故事的終點與起點………………………………… 74 第一節 故事終點的省思…………………………………… 74 第二節 力有未逮之處……………………………………… 80 第三節 另一個故事的起點………………………………… 81 參考文獻………………………………………………………… 82 附錄……………………………………………………………… 91

    一、中文部分:
    丁雪茵、鄭伯壎、任金剛(1996):質性研究中研究者的角色與主觀性。本土心理學研究,6,354-376。
    王怡婷(2001):初探女性成年智障者婚姻與照顧。國立中正大學社會福利研究所碩士論文(未出版)。
    中華民國智障者家長總會(1998):心智障礙者家長法律手冊-讓您的孩子有保障。台北:中華民國智障者家長總會。
    身心障礙者權益保障法(2007)。中華民國九十六年七月十一日總統華總(一)義字第0九六000八七三三一號令修正公布
    吳佩娟(2000):輕度心智障礙成人社會角色之研究。國立中正大學成人及繼續教育研究所碩士論文(未出版)。
    吳渼惠(1995):三代的悲情-智障者家庭記事。豐年半月刊,45(15),58-59。
    卓妙如、潘玉涵、詹沛祺、王秋琪、蔡育倫、吳佳靜、王譽潔(2007):智能障礙者絕育議題之倫理考量。身心障礙研究,5(3),178-196。
    周月清(2008):2006年身心障礙者權利公約。社區發展季刊,123,79-105。
    林紀東(1992):新編六法全書。台北:五南。
    孫一信(2006):台灣的智障者人權,現況與反思。義守大學師資培育中心通訊,34。2010年6月1日,取自
    http://www.isu.edu.tw/upload/25/6/files/dept_6_lv_3_3931.doc
    黃瑞琴(2003)`:質的教育研究方法。台北:心理。
    蔡敏玲(1996):教育質性研究者請在文本中現身:兩項重要思慮。國民教育,3(2),21-30。
    蔡敏玲(2001):教育質性研究報告的書寫:我在紀實與虛構之間的認真與想像。國立臺北師範學院學報,14,233-260。
    蔡敏玲(2004):我看教育質性研究創塑意義的問題與難題:經歷、剖析與再脈絡化。國立臺北師範學院學報,17(1),493-518。
    潘淑滿(2003):質性研究理論與應用。台北:心理
    鍾倫納(1993):應用社會科學研究法。台北:台灣商務。
    嚴嘉楓、胡蓉、林金定(2008):女性智能障礙者月經、性與人權進程之思考。身心障礙研究,6(4),286-291。

    二、英文部分:
    Aunos M. & Feldman, M. A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 15, 285-296.
    Aunos, M., Feldman, M., & Goupil, G. (2008). Mothering with intellectual disabilities: relationship between social support, health and well-being, parenting and child behaviour outcomes. Journal of Applied Research in Intellecual Disabilities, 21, 320-330.
    Bernard, S. (2007). Parents with intellectual disabilities - the assessment of parenting ablity. Advances in Mental Health and Learning Disabilities, 1(3), 14-18.
    Ehlers-Flint, M. (2002). Parenting perception and social supports of mothers with congnative disabilities. Sexuality and Disability, 20(1), 29-51.
    Feldman, M. A. (2004). Self-directed learning of child-care skills by parents with intellectual disabilities. Infants and Young Children, 17(1), 17-31.
    Feldman, M. A., & Case, L. (1999). Teaching child-care and safety skills to parents with intellectual disabilities through self-learning. Journal of Intellectual & Developmental Disability, 24(1), 24-77.
    Feldman, M. A., Ducharme, J. M., & Case, L. (1999). Usingself-instructional pictortial manuals to teach child-care skills to mothers with intellectual disabilities. Behavior Modification, 23(3), 480-497.
    Feldman, M. A., Léger, M. & Walton-Allen, N. (1997). Stress in mothers with intellectual disabilities. Journal of Child and Family Studies, 6(4), 471-485.
    Feldman, M., Varghese, J., Ramsay, J., & Rajska, D. (2002). Relationships between social support, stress and mother-child interaction in mothers with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 15, 314-323.
    Glaun, D., Brown, P. F. (1999). Motherhood, intellectual disability and child protection: characteristic of a court sample. Journal of Intellectual & Developmental Disability, 24(1), 95-105
    Guba., E.G, & Lincoln., Y.S. (1982). Epistemological and methodological bases of naturalistic inquiry. Educational Communications and Technology Journal, 30(4), 232-252.
    International Association for the Scientific Study of Intellectual Disabilities Special Interest Research Group on Parents and Parenting with Intellectual Disabilities (2008). Parents labeled with intellectual disability: position of the IASSID SIRG on parents and parenting with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 21, 296-307.
    Kroese, B. S., Hussein, H., Clifford, C., & Ahmed, N. (2002). Social support network and psychological of mothers with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 15, 324-340.
    Llewellyn, G. (1997). People with intellectual disability as parents: Perspectives from the professional literature. Australia and New Zealand Journal of Developmental Disabilities, 16(4), 369-380.
    Llewellyn, G. (1997). Support and services for parents with intellectual disability: what? when? how? by whom? Report prepared for the Australiuan Family and Disability Studies Research Centre, School of Occupational Therapy, Faculty of Health Sciences, University of Sydney.
    Llewellyn, G., Mayes, R. & McConnell, D., (2008). Toward acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellecual Disabilities, 21, 293-295.
    Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support network. Journal of Intellectual Disability Research, 46(1), 17-34.
    Llewellyn, G., McConnell, D., & Bye, R. (1995). Parents with intellectual disability: support and services required by parents with intellectual disability. Report to the Disabililty Services Sub-committee (DDSC) of the Standing Committee of Community Services and Income Security Administrators, Department of Human Services and Health, Canberra.
    Llewellyn, G., McConnell, D., Cant, R., & Westbrook, M. (1999). Support network of mothers with an intellectual disability: an exploratory study. Journal of Intellectual & Developmental Disability, 24(1), 7-26.
    Llewellyn, G., McConnell, D., & Mayes, R. (2005). Health of mothers with intellectual disability. Paper presented at the 1st Asia-Pacific Regional Congress of International Association for the Scientific Study of Intellectual Disabilities (IASSID), Taipei, Taiwan.
    Llewellyn, G., McConnell, D., Russo, D., Mayes, R., & Honey, A. (2002). Home based programs for parents with intellectual disabilities: lessons from practice. Journal of Applied Research in Intellecual Disabilities, 15, 341-353.
    Löfgren-Mårtenson, L. (2004). “May I?” About sexuality and love in the new generation with intellectual disabilities. Sexuality and Disability, 22(3), 190-207.
    Martin, R. (2003). A real life, a real community : the empowerment and full participation of people with an intellectual disability in their community. A speech presented at the 16th ACMR, Tsukuba, Japan.
    Mayes, R. A., Llewellyn, G. M., & McConnell, D. (2005, June) [Abstract]. “That’s who I choose to be”: becoming a mother for women with intellectual disabilities. Paper presented at the 1st Asia-Pacific Regional Congress of International Association for the Scientific Study of Intellectual Disabilities (IASSID), Taipei, Taiwan.
    Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: mothers with intellectual disabilities creating their social support network. Journal of Applied Research in Intellecual Disabilities, 21, 341-350.
    McConnell, D., & Llewellyn, G. (2000). Disability and discrimination in statutory child protection. Disability and Society, 15(6), 883-895.
    McConnell, D., & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 297-317.
    McConnell, D., Mayes, R. & Llewellyn, G. (2008). Women with intellectual disability at risk of adverse pregnancy and birth outcomes. Journal of Intellectual Disability Research, 52(6), 529-535.
    McCormack, C. (2004). Storying stories: a narrative approach to in-depth interview conversations. International Journal of Social Reserch Methodology, 7(3), 219-236.
    McGaw, S., Ball, K., & Clark, A. (2002). The effect of group intervention on the relationships of parents with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 15, 354-366.
    Mickelson, P. (1947). The feebleminded parent : a study of 90 family cases. American Journal of Mental Deficiency, 51(4), 644-653.
    Mildon, R., Wade, C. & Matthews, J. (2008). Considering the contextual fit of an intervention for families headed by parents with an intellectual disability: an exploratory study. Journal of Applied Research in Intellecual Disabilities,21, 377-387.
    Montreal PAHO/WHO International Conference on Intellectual Disbility (2004). The Montreal Declaration on Intellectual Disabilities. Retrieved June 27, 2006, from http://www.aamr.org/pdf/DeclarationMTL.pdf
    Murphy, G., Feldman, M. A. (2002). Parents with intellectual disabilities. Journal of Applied Research in Intellecual Disabilities, 15, 281-284.
    Nirje, B. (1985). The basis and logic of the normalization principle. Australia and New Zealand of Developmental Disabilities, 11(2), 65-68.
    Perske, R. (2004). Nirje’s eight planks. Mental Retardation, 42(2), 147-150.
    Pixa-Kettner, U. (1999). Follow-up study on parenting with intellectual disability in Germany. Journal of Intellectual & Developmental Disability, 24(1), 75-93.
    Reinders, H. (2008). Persons with disabilities as parents: what is the problem? Journal of Applied Research in Intellecual Disabilities,21, 308-314.
    Spencer, M. & Llewellyn, G. (2005, June). Understanding and planning support: a collaborative approach to assessing the support needs of parents with intellectual disability. Paper presented at the 1st Asia-Pacific Regional Congress of International Association for the Scientific Study of Intellectual Disabilities (IASSID), Taipei, Taiwan.
    Spencer, M., McConnell, D. & Llewellyn, G. (2005, June). What works? – supporting parents with intellectual disability. Paper presented at the 1st Asia-Pacific Regional Congress of International Association for the Scientific Study of Intellectual Disabilities (IASSID), Taipei, Taiwan.
    Strike, J., & McConnell,D. (2002). Parent with intellectual disability: just the same, only different. Interaction 15(4), 11-15.
    Tarleton, B. (2007). Specialist advocacy services for parentswith learning disabilities involved in child protection proceedings. British Journal of Learning Disability, 36, 134-139.
    Traustadóttir, R., & Sigurjónsdóttir, H. B. (2008). The “ mother“ behind the mother: three generations of mothers with intellectual disabilities and their family support network. Journal of Applied Research in Intellecual Disabilities,21,331-340.
    Tymchuk, A. J. (1999). Moving towards intergration of services for parents with intellectual disabilities. Journal of Intellectual & Developmental Disability, 24(1), 59-74.
    United Nations (1948). Universal Declaration of Human Rights. Retrieved December 27, 2005, from http://www.un.org/Overview/rights.html
    United Nations (1971). Universal Declaration of Human Rights. Retrieved June 27, 2006, from http://www.unhchr.ch/html/menu3/b/m_mental.htm
    United Nations (2006). Convention on the rights of persons with disabilities. Retrieved May 23, 2009, from http://www2.ohchr.org/english/law/disabilities-convention.htm
    Wade, C. M., Llewwllyn, G., & Matthews, J. M. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellecual Disabilities, 21, 351-366.
    Wade, C. M., Mildon, R. L., & Matthews, J. M. (2007). Service delivery to parents with an intellectual disability: family-centred or professionally centred? Journal of Applied Research in Intellecual Disabilities, 20, 87-96.
    White, S. E. & Labb, M. A. (2005, June)[Abstract]. The development of a supportive community for parents with intellectual disability. Paper presented at the 1st Asia-Pacific Regional Congress of International Association for the Scientific Study of Intellectual Disabilities (IASSID), Taipei, Taiwan.
    Willems, D. L., de Vries, J. N., Isarin, J. & Reinders, J. S. (2007). Parenting by persons with intellectual disability: an explorative study in the Netherlands. Journal of Intellectual Disability Research, 51(7), 537-544.

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