研究生: |
何北音 Ho-Pei-Ying |
---|---|
論文名稱: |
揚帆,航向大學新生活---亞斯伯格青年之個案研究 |
指導教授: | 張正芬 |
學位類別: |
碩士 Master |
系所名稱: |
特殊教育學系 Department of Special Education |
論文出版年: | 2007 |
畢業學年度: | 95 |
語文別: | 中文 |
論文頁數: | 271 |
中文關鍵詞: | 大學生活 、亞斯伯格症 、個案研究 、質性研究 、大學新生 、大學新生活 、亞斯伯格 、大學生 |
英文關鍵詞: | Asperger, freshman |
論文種類: | 學術論文 |
相關次數: | 點閱:196 下載:129 |
分享至: |
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報 |
本研究採用質性研究方法之個案研究,深入探討一位亞斯伯格症青年(小雅)的大學新生活樣貌。歷時七個月的研究過程中,先後與21名研究參與者進行互動,並透過觀察、訪談與文件蒐集相關資料。經過資料的分析與詮釋,研究者首先分從學業學習、課外活動、人際友伴、生活知能四個向度,呈現小雅大學新生活樣貌。再者,根據研究結果與發現,提出六項議題:(一)亞斯伯格症障礙特質對小雅大學生活的影響,主要反映在人際層面。(二)小雅大學後的改變,主要表現在其人際開放性、學習責任感和生活獨立性的提升,以及對個人外表的重視。(三)小雅大學新生活的愉快經驗,體現於活躍且不斷精進的學習歷程、多采多姿的社團活動、親密的友伴經驗,以及饒負趣味的校園生活中。(四)在大學新生活中,小雅自覺學業學習乃最為困難的部分。而面對這些困阻,小雅多能發展出不同的策略以為因應。(五)小雅在大學環境中所獲支持,除了校方依法編組之輔導小組,提供障礙補償與因應之「正式支持資源」外,尚有由家人、友伴等人所形成之「非正式支持資源」,為小雅帶來心理和情感層面的支持力量。(六)關於障礙的揭露,不同的揭露時機與揭露者-揭露對象關係,將帶來不同的揭露結果。最後,基於研究發現與討論,提出未來研究與相關實務工作可行之具體建議,以供參考。
This research adopted the case study, one kind of ualitative methods, to profoundly investigate the fresh university life of a young adult (named Hsiao-Ya) with Asperger's syndrome. During the seven months long survey procedure, the researcher continually interacted with 21 participants and collected meaningful data from observation, interview and literature review.
And then, after data analysis and interpretation, this research firstly presented Hsiao-Ya’s fresh university life based on four dimensions, school-work acquisition, extracurricular activities, interpersonal companionship, and collegiate-life skills. Moreover, according to research findings and results, this research summarized and brought up the following six topics.
(a) The impact of Asperger syndrome on Hsiao-Ya’s university
fresh life primarily lay in the interpersonal aspect.
(b) The changes following Hsiao-Ya’s entrance to the university
mainly occurred in her uplifts of interpersonal openness, learning obligation, living independence, and regards for her own appearance.
(c) The positive experiences of Hsiao-Ya’s fresh university life
generally occurred in her animated progressive learning process, colorful extracurricular activities, close companionship, and fascinating campus life.
(d) In her fresh university life, Hsiao-Ya perceived that school-work
acquisition was the most challenging part; however, she could develop strategies to cope with those challenges.
(e) As for the supportive resources in university, the ‘official
supportive resource’ (the guidance group set by law operation) could provide Hsiao-Ya with disability compensation and adjustment; in addition, the ‘non-official supportive resource’ (composed of her family, friends, etc.) could also bring her supportive strength from psychological and emotional aspects.
(f) Different decisions of disability disclosure could result in different
outcomes that accompany both advantages and disadvantages.
Finally, in view of these findings and discussions, substantial suggestions for future studies and relative practice are proposed.
參 考 文 獻
一、 中文部份
王文科(2001):教育研究法。台北:五南。
王文科、王智弘(2002):質的教育研究:概念分析。台北:師大書苑。
方淑玟、張政文、詹福歸、林政昇、林思睦(1993):北師大一、大二、大三學生之寂寞程度調查及其相關研究。傳習,11,101-129。
朱麗芳(1977):私立東海大學大一學生生活適應調查報告。東海學報,18,211-224。
李政賢(譯)(2006):Marshall, C. & Rossman, G. B.著。 質性研究:設計與計畫撰寫(Designing qualitative research)。台北:五南。
沈連魁(2004):嘉義地區大學新生運動參與程度與心理適應能力關係之探討。體育學報,36,131-144。
何善欣(譯)(2005):T. Attwood著。亞斯伯格症:寫給父母及專業 人士的實用指南(Asperger's syndrome : a guide for parents and professionals)。台北:九周。
何慧玥(1992):大專聽覺障礙學生學校生活適應之研究。國立台灣師範大學特殊教育研究所碩士論文(未出版)。
李燕鳴、劉文玲、陳福士(2002):東華大學一年級新生的生活適應。慈濟醫學,14(6),365-371。
周玉真(2003):大學新生生活壓力的內涵初探。諮商與輔導,214,38-44。
吳秀碧、賀孝銘(1991):新生大學生活困擾之調查研究。輔導學報,14,175-206。
林幸台(2006):身心障礙者生涯發展現況與展望。國立台灣師範大學特殊教育研究所「身心障礙者生涯輔導」課程講義(未出版)。
林彥佑(1998):大學生因應策略之訪談評量與調查研究。國立成功大學教育研究所碩士論文(未出版)。
林佩璇(2000):個案研究及其在教育研究上的應用。載於中正大學(編),質的教育研究方法,高雄:麗文文化。
林真平、陳靜江(2003):身心障礙大學生壓力因應歷程之探討。東台灣特殊教育學報,5,143-162。
林寶貴(1997):世界各國身心障礙者大專教育及輔導措施。載於林寶貴、楊瑛、楊中琳(編),大專資源教室輔導手冊(1-25頁)。台北:國立台灣師範大學特殊教育中心。
邱憶惠(1999):個案研究:質化取向。教育研究,7,113-127。
姜立萍、孫乙仙(1995):銘傳大一學生學校生活適應之研究。銘傳學刊,7,233-264。
胡幼慧(1996):質性研究:理論、方法及本土女性研究實例。台北:巨流。
施建彬(2004):大學新生心理健康及相關因素探討。大業學報,13(2),109-117。
洪若和(1993):大學新生生活狀況調查研究。國教之聲,26(3),31-36。
洪儷瑜(1997):大專資源教室的角色與任務。載於林寶貴、楊瑛、楊中琳(編),大專資源教室輔導手冊(87-101頁)。台北:國立台灣師範大學特殊教育中心。
姚素卿(2003):一個工讀生實際參與大學資源教室工作業務之省思與建議。國立東華大學教育研究所碩士論文(未出版)。
宣崇慧(2001):資源教室方案理念在大專院校之實踐。特殊教育季刊,78,20-25。
夏林清、楊蓓、李憶薇、吳英璋、楊極東(1986):調整心態當個快樂新鮮人:五位專家會診大學新生的調適危機。中國論壇,264,20-31。
高敬文(1996):質化研究方法論。台北:師大書苑。
高熏芳、林盈助、王向葵(譯)(2001):J. A. Maxwell 著。質化研究設計:一種互動取向的方法(Qualitative research design: An interactive approach)。台北:心理。
許天威(1997):運用科技方便,開拓學習資源。載於林寶貴、楊瑛、楊中琳(編),大專資源教室輔導手冊(43-58頁)。台北:國立台灣師範大學特殊教育中心。
許天威、蕭金土、吳訓生、林和姻、陳亭予(2002):大專校院身心障礙學生學校適應狀況之研究。特殊教育學報,16,159-198。
陳麗君(1995):大學視覺障礙學生學校生活適應之研究。國立彰化師範大學特殊教育研究所碩士論文(未出版)。
黃春枝(1999):政大學生學校生活適應及相關因素之研究。訓育研究,38,56-70。
黃瑞琴(1991):質的教育研究方法。台北:心理。
張文英(2002):大專校院資源教室輔導人員工作滿意之研究。國立彰化師範大學特殊教育研究所碩士論文(未出版)。
張正芬(2005):心智理論、執行功能與中樞統合論之比較。國立台灣師範大學特殊教育研究所「自閉症專題研究」課程講義(未出版)。
張英鵬(2001):我國大專身心障礙學生之生活品質研究。特殊教育學報,15,273-307。
張蓓莉(1998):資源教室方案應提供的支援服務。特殊教育季刊,67,1-5。
張蓓莉(1997):從資源教室方案的概念談大專資源教室的任務。載於林寶貴、楊瑛、楊中琳(編),大專資源教室輔導手冊(75-86頁)。台北:國立台灣師範大學特殊教育中心。
曾淑貞、呂尚芝(1995):臺南師院大一新生生活適應問題之調查研究。臺南師院學生學刊,16,77-101。
楊宗仁(譯)(2006):Leicester City Council & estershire County Council 著。亞斯伯格症者實用教學策略:教師指南(Asperger syndrome- practical strategies for the classroom: A teacher’s guide)。台北:心理。
楊宗仁(2002):自閉症青少年之「執行功能」研究:認知彈性。特殊教育研究學刊,22,49-73。
萬明美、張照明、陳麗君(1997):大學視覺障礙學生學校生活適應及大學同儕對其態度之研究。特殊教育學報,12,1-39。
簡茂發(1986):大學生適應問題及其相關因素之研究。教育研究所集刊,28,1-90。
謝琇玲(1998):大學新生的生活適應與憂鬱傾向之調查研究。義守大學學報,5,367-380。
二、 英文部份
Aune, B. (1998). Higher education and disability in the United States of Amenrica: The context, a comprehensive model, and current issues. In A. Hurst (Ed.), Higher education and disabilities: International approaches. England: Ashgate Pub.
Baker, B., & Blanding, M. (1985). Bridging the gap: College preparation for disabled students. In J. M. Gartner (Ed.), Proceeding of the 1985 AHSSPPE Conference: Association on handicapped student service programs in post-secondary education (pp194-196). Atlanta, GA: AHSSPPE.
Baron-Cohen, S., & Swettenham, J. (1997). Theory of mind in autism: Its relationship to executive function and central coherence. In D. J. Cohen & A. M. Donnellan (Eds.), Handbook of autism and pervasive developmental disorders (pp880-893). New York: John Wiley & sons.
Baron-Cohen, S., & Wheelwright, S. (2003). The friendship questionnaire: An investigation of adults with Asperger syndrome or high-functioning autism, and normal sex differences. Journal of Autism & Developmental Disorders, 33(5), 509-517.
Benshoff, J. H., & Fried, J. H. (1990). Developmental skill attainment among college students with disabilities. Rehabilitation counseling bulletin, 34(1), 44-52.
Bogdan, R. C., & Biklen, S. K. (1982). Qualitative research for education: An introduction to theory and methods. Boston: Allyn and Bacon.
Braithwaite, D. O. (1991). “Just how much did that wheelchair cost?”: Management of privacy boundaries by persons with disabilities. Western journal of speech communication, 55, 254-273.
Brinckerhoff, L. C., Shaw, S. F., & McGuire, J. M. (1992). Promoting Access, Accommodations, and independence for College Students with Learning Disabilities. Journal of learning disabilities, 25(7), 417-429.
Chelune, G. C. (Ed.). (1979). Self-disclosures: Origins, patterns, and implications of openness in interpersonal relationships. San Francisco: Jossey-Bass.
Clarke, D. J., Baxter, M., Perry, D., & Prasher, V. (1999). Autism, affective disorders and psychoses. Autism, 3(3), 255-271.
Dalke, C. L. (1991). Support programs in higher education for students with disabilities(pp25-36). Gaithersburg, Maryland: Aspen Pub.
Dalke, C., & Schmitt, S. (1987). Meeting the transition needs of college-bound students with learning disabilities. Journal of Learning Disabilities, 20(3), 176-180.
Dexter, B. L. (1982). Helping Learning Disabled Students Prepare for College. Journal of Learning Disabilities, 15(6), 344-346.
D’Zurilla, T. J., & Sheedy, C. F. (1991). Relation between social problem-solving abilities and subsequent level of psychological stress in college students. Journal of personality and social psychology, 61(5), 841-846.
Erikson, E. H. (1968). Identity, youth and crisis. New York: Norton.
Finn, L. L. (1999). Learning disabilities program at community college and four-year colleges and universities. Community college journal of research & practice, 23(7). 629-639.
Fisher, S., & Hood, B. (1987). The stress of the transition to university: A longitudinal study of psychological disturbance, absent-mindedness and vulnerability to homesickness. British journal of psychology, 78(4), 425-441.
Frith, U. (1989). Autism: Explaining the enigma. Oxford, England: Basil Blackwell.
Frith, U. (1991). Asperger and his syndrome. In U. Frith (Ed.), Autism and Asperger syndrome. New York: Cambridge University Press.
Glennon, T. J. (2001). The stress of the university experience for students with Asperger syndrome. Work ,17(3), 183-190.
Golan, O., Baron-Cohen, S., & Hill, J.(2006). The Cambridge Mindreading (CAM) Face-Voice Battery: Testing Complex Emotion Recognition in Adults with and without Asperger Syndrome. Journal of Autism & Developmental Disorders, 36(2), 169-183.
Gold, R. L. (1958). Roles in sociological field observations. Social forces, 36, 217-223.
Gordon, M., & Keiser, S. (1998). Underpinnings. In M. Gordon, & S. Keiser (Eds.), Accommodation in higher education under the Americans with Disabilities Act. New York: The Guilford Press.
Hemmings, B. H., Hill, D., & Ray, D. (1997). First year university in retrospect: The voice of rural students. (Eric document reproduction service No. ED 429791).
Henton, J., Lamke, L., Murphy, C., & Haynes, L. (1980). Crisis reactions of college freshmen as a function of family support systems. The personnel and guidance journal, 58, 508-511.
Houck, C. K., Asselin, S. B., Troutman, G. C., & Arrington, J. M. (1992). Students with Learning Disabilities in the University Environment: A Study of the Faculty and Student Perceptions. Journal of Learning Disabilities, 25(10), 678-684.
Howlin, P. (2000). Outcome in adult life for more able individuals with autism or Asperger syndrome. Autism: The international journal of research & practice, 4(1), 63-83
Jamieson, J., & Jamieson, C. (2004). Managing Asperger syndrome at college and university: A resourse for students, tutors and support services. Heftet. David Fulton Pub.
Kin, A., Mcpartlands, J., & Volkmar, F. R. (2005). Asperger syndrome. In R. Volkmar, R. Paul, A. Kin, & D. Cohen (Eds.), Handbook of utism and pervasive evelopmental disorders (3rd ed, pp88-125). New York: John Wiley & Sons.
Kohn, J. P., & Frazer, G. H. (1986). An academic stress scale: Identification and rated importance of academic stressors. Psychological reports, 59, 415-426.
Larsen, F. W., & Mouriden, S. E.(1997). The outcome in children with childhood autism and Asperger syndrome. originally diagnosed as psychotic: A 30-year-follow-up study of subjects hospitalized as children. European child and adolescent psychiatry, 6, 181-90.
Lissner, L. S.(1997). Legal issues concerning all faculty in higher education. In B. M. Hodge, & J. Preston-Sabin (Eds.), Accommodations or just good teaching?: Strategies for teaching college students with disabilities(pp5-22). London: Greenwood Pub.
Lokitz, B. D., & Sprandel, H. (1976). The first year: A look at the freshmen experience. Journal of college student personnel, 17, 274-279.
Lord, C., & Venter, A. (1992). Outcome and follow-up studies of high functioning autistic individuals. In Schopler E., & Mesibov, G.. B. (Eds.), High functioning individuals with autism(pp187-200). NY: Plenum.
Luckett, T., & Powell, S. (2003). Students with Autism And Asperger's Syndrome. In S. Powell (ed.), Special teaching in higher education: successful strategies for access and inclusion. London: Kogan Page.
Lundeberg, M., & Svien, K. (1988). Developing Faculty Understanding of College Students with Learning Disabilities. Journal of Learning Disabilities, 21(5), 299-306.
Lynch, R. T., Gussel, L. (1996). Disclosure and self-advocacy regarding disability-related needs: Strategies to maximize integration in postsecondary education. Journal of counseling & development, 74(4), 352-357.
Merriam, S. B. (1988). Case study research in education. Thousand Oaks, CA: Jossey-Bass.
Mertens, D. M. (2005). Research methods in educational and psychology: Integrating diversity with quantitative, qualitative, and mixed methods.(2nd ed, pp229-260). Thousand Oaks, CA: Sage.
Myles, B. S., & Simpson, R. L. (2003). Asperger syndrome: A guide for educators and parents (2nd ed, pp1-21). Austin, Texan: Pro-ed.
Oklahoma Association on Higher Education And Disability (OKAHEAD). Transition from high school to college. Retrived August 10th, 2006, from: http://www.okahead.org/transition.html
Oyane Nicolas M. F., & Bjorvatn, B. (2005). Sleep disturbances in adolescents and young adults with autism and Asperger syndrome. Autism: the international journal of research & practice, 9(1), 83-94.
Ozonoff, S., Pennington, B. F., & Rogers, S. J. (1991). Executive function deficits in high-functioning autistic individuals: Relationship to theory of mind. Journal of child psychology and psychiatry, 32, 1081-1105.
Petronio, S., Martin, J., & Littlefield, R. (1984). Prerequisite conditions for self-disclosure: A gender issue. Communication monographs, 51,268-273.
Quality Assurance Agency for Higher Education (QAAHE) (1999). Code of practice for the assurance of academic quality and standards in higher education: section 3: Students with disabilities. Retrived June 27th, 2006,from: http://www.qaa.ac.uk/academicinfrastructure/codeOfPractice/section3/COP_disab.pdf
Rath, K. A., & Royer, J. M. (2002). The Nature and Effectiveness of Learning Disability Services for College Students. Educational Psychology Review, 14(4), 353-381.
Rice, K. G. (1992). Separation-individuation and adjustment to college: A longitudinal study. Journal of counseling psychology, 39, 203-213.
Richardson, J. T. E. (2001). The Representation and Attainment of Students with a Hearing Loss at the Open University. Studies in Higher Education, 26(3). 299-312.
Rocco, T. S. (2001). Helping Adult Educators Understand Disability Disclosure. Adult Learning, 12(2), 10-12
Rutherford, M. D., Baron-Cohen, S. & Wheelwright, S. (2002). Reading the mind in the voice: A study with normal adults and adults with Asperger syndrome and high functioning autism. Journal of autism & developmental disorders, 32(3), 189-194
Rumsey, J. M., Rapoport, J. L., & Sceery, W. R. (1985). Autistic children as adults: Psychiatric, social and behavioral outcomes. Journal of the American academy of child psychiatry, 24, 465-473.
Sainsbury, C. (2006). University students with autism and Asperger’s syndrome. Retrived June 5th, 2006,from: http://www.cns.dircon.co.uk/
Saucier, C. T., & Gagliano, G. V. (1998). Serving students with disabilities in higher education in the United States of America. In A. Hurst (Ed.), Higher education and disabilities: International approaches. England: Ashgate Pub.
Scott, S. S. (1996). Understanding colleges: An overview of college support services and programs available to clients from transition planning through graduation. Journal of Vocational Rehabilitation, 6(3), 217-230.
Sgan-Cohen, H. D., & Lowental, U. (1988). Sources of stress among lsraeli dental students. The journal of the American college health association, 36, 317-321.
Shriberg, L. D., Paul, R., McSweeny, J. L., Klin, A., Cohen, D. J., & Volkmar, F. R. (2001). Speech and prosody characteristics of adolescents and adults with high-functioning autism and Asperger syndrome. Journal of speech, language & hearing research, 44(5), 1097-1115.
Sidiropoulou-Dimakakou, D. (1998). Disabled university students in Greece. In A. Hurst (Ed.), Higher education and disabilities: International approaches. England: Ashgate Pub.
Soderstrom, H., Rastan, M., & Gillberg, C. (2002). Temperament and character in adults with Asperger syndrome. Autism: The international journal of research & practice, 6(3), 287-297.
Szatmari, P., Bartolucci, G., Bremner, R. S., Bond, S., & Rich, S. (1989). A follow-up study of high functioning autistic children. Journal of autism and developmental disorders, 19, 213-226.
Tani, P., Lindberg, N., Nieminen-von Wendt, T., Von Wendt, L., Virkkala, J., Appelberg, B. et al.(2004). Sleep in Young Adults with Asperger Syndrome. Neuropsychobiology, 50(2), 147-152.
Tani, P., Lindberg, N., Wendt, T. N., Von Wendt, L., Alanko, L., Appelberg, B., & Porkka-Heiskanen, T. (2005). Actigraphic assessment of sleep in young adults with Asperger syndrome. Psychiatry & clinical neurosciences, 59(2), 206-208.
Tantam, D. (2000a). Adolescence and adulthood of individuals with Asperger syndrome. In A. Klin, F. R. Volkmar, & S. S. Sparrow (Eds.), Asperger syndrome. NY: The Guilford Press.
Tantam, D. (2000b). Psychological disorder in adolescents and adults with Asperger syndrome. Autism: The international journal of research & practice, 4(1), 47-62.
Thompson, T. L., & Seibold, D. R. (1978). Stigma management in normal-stigmatized interactions: Test of the disclosure hypothesis and a model of stigma acceptance. Human communication research, 4, 231-242.
Towbes, L. C., & Cohen, L. H. (1996). Chronic stress in the lives of college students: Scale development and prospective prediction of distress. Journal of youth and adolescence, 25, 199-217.
Trinity College Dublin. Supporting students with Asperger's Syndrome in College. Retrived August 25th, 2006,from: http://www.tcd.ie/disability/docs/pdf/Asperger.pdf#search='supporting%20students%20with%20Asperger%27s%20syndrome%20in%20college'
Venter, A., Lord, C., & Schopler, E. (1992). A follow-up study of high functioning autistic children. Journal of child psychology and psychiatry, 33, 489-507.
Warnath, C., & Dunnington, L. (1981). Disabled students on campus. Journal of college student personnel, 22(3), 236-241.
Welkowitz, L. A., & Baker, L. J. (2004). Asperger's Syndrome: Intervening in Schools, Clinics, and Communities. Mahwah, N.J. : Lawrence Erlbaum Associates.
Weiner, E. (1999). The meaning of education for university students with a psychiatric disability: A grounded theory analysis. Psychiatric Rehabilitation Journal, 22(4), 403-410.
Wicklund, R. A., & Frey, D. (1980). Self-awareness theory: When the self makes a difference. In D. M. Wegner & R. R. Vallacher (Eds.), The self in social psychology (pp. 31-54). New York: Oxford University Press.
Williams, G., & Palmer, A.(2006) Preparing for college: Tips for students with HFA / Asperger’s syndrome. Retrived August 10th, 2006,from: http://www.teacch.com/college.html
Willson, S. (1977). The use of ethnographic techniques in educational research. Review of educational research, 47(1), 245-265.
Wing, L. (1981). Asperger’s syndrome: A clinical account. Psychological Medicine, 11, 115-130.
Winter, M. (2004). Asperger syndrome: What teachers need to know (2nd ed, pp9-28). London: Jessica Kingsley Pub.
Wolforth, J. (1998). Policy and provision of support services in Canadian universities. In A. Hurst (Ed.), Higher education and disabilities: International approaches. England: Ashgate Pub.
Wright, J. J. (1967). Reported personal stress sources and adjustment of entering freshmen. Journal of counseling psychology, 14(4), 371-373.
Wright, J. J. (1964). Environmental stress evaluation in a student community. Journal of the American college health association, 12, 325-336.
Yin, R. K. (1989). Case study research: Design and methods.London: Sage Pub.