研究生: |
吳秋南 Wu, Chiu-Nan |
---|---|
論文名稱: |
中途失明者主要照顧家屬心路歷程探討 A Study on the Psychological Process of Family Caregivers for Individuals with Adventitious Blindness |
指導教授: |
張千惠
Chang, Chien-Huey |
口試委員: | 林寶貴 何英奇 張千惠 |
口試日期: | 2021/08/26 |
學位類別: |
碩士 Master |
系所名稱: |
復健諮商研究所 Graduate Institute of Rehabilitation Counseling |
論文出版年: | 2021 |
畢業學年度: | 109 |
語文別: | 中文 |
論文頁數: | 311 |
中文關鍵詞: | 中途失明 、照顧家屬 、生活重建 、自立生活 、社會支持 |
英文關鍵詞: | adventitious blindness, caregiver, rehabilitation, independent living, social support |
研究方法: | 質性研究 、 敘事探究法 |
DOI URL: | http://doi.org/10.6345/NTNU202101670 |
論文種類: | 學術論文 |
相關次數: | 點閱:151 下載:4 |
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本研究採敘事探究(narrative inquiry)法,旨在探究中途失明者主要照顧家屬心路歷程,並了解照顧者對社會支持的覺知。為提供其他中途失明者與其照顧家屬能有可供參考之案例,以協助他們能有效面對並適應新生活模式,本研究以立意取樣,邀請五位重建成功之中途失明者,及六位他們的主要家庭照顧者,同為協同研究參與者,採用半結構訪談大綱,蒐集其照顧歷程的生命故事。針對研究問題,提出以下結論。
本研究對於中途失明者照顧家屬心路歷程研究之新發現有:一、主要照顧者對失明家屬就醫態度視情況有異;二、男性承擔照顧意願增高,顛覆過去的刻板印象;三、照顧者與被照顧者之雙老家庭,照顧的高難度值得關注;四、照顧者與被照顧者都應建立強大內在能量,並擴展生命視野;五、照顧家屬具正向宗教信仰,有助於接受失明的事實,並規劃妥善照顧方式;六、中途失明者成功的生活重建,有助於家庭盡早重回正常的生活軌道。七、本研究五位中途失明者,是屬於生活重建成功適應的案例,且其照顧家屬的人格特質良好,故照顧者的身心健康狀況未必受影響;八、中途失明者不同時期生活狀態,是影響主要照顧家屬情緒歷程的主因;九、現今社群網絡,有助於主要照顧家屬人際關係不受影響;十、本研究中六個家庭之經濟狀況原本即較為優渥,在發生家人成為中途失明者後,其家庭經濟狀況並未受到影響。故照顧家屬者是否受困於經濟壓力,端視該家庭原有經濟狀況而定;十一、照顧家屬能自我覺察,有助於因應負向歷程;十二、照顧家屬向外尋求支援有助於重建正向生活。
探討中途失明者照顧家屬對社會支持的覺知的結論為:一、具價值性的資訊支持,有助於採取正確且適當決定照顧策略;二、具體的實質支持,有助於消除或減緩照顧者的壓力;三、網絡支持有助於照顧者減少孤單感;四、來自受照顧者的情感支持,有助於主要照顧者感受到愛與鼓勵;五、受照顧者、其他親人或陌生人的肯定,都是主要照顧者自尊支持的來源。
本研究亦針對中途失明、主要照顧家屬、外部支持系統提出不同建議,期望對照顧安排、照顧能量提升、以及照顧服務規劃,能有所助益。此外,根據本研究限制,亦對未來研究提出相關建議。
This qualitative study, with narrative inquiry, explored the psychological process of family caregivers for individuals with adventitious blindness. Therefore, the focus of this study is to investigate the psychological process of family caregivers and the social support that caregivers perceived. Data were collected and analyzed from semi-structured interviews of 11 participants, including 6 family caregivers and 5 individuals with adventitious blindness. To investigate the new life of the persons with visual impairments and their caregivers, this study chose purposive sampling methods to find out their experiences and perceptions.
By analyzing the life experience of the participants, 12 themes emerged as follows: (1) caregivers had different attitudes towards medical treatment of the family members with visual impairments, (2) male mem-bers of family were willing to take more responsibility of caring than before; (3) it was necessary to pay attention to the issues of double-aging families of caregivers and care recipients; (4) both caregivers and care recipients needed stronger inner energy for a wider vision of life; (5) positive religions were helpful for caregivers both in accepting family members with visual impairment and care taking of him/her; (6) successful rehabili-tation of the persons with visual impairments was the key to re-build normal family life; (7) the caregivers maintained physical and mental health because of optimistic personalities and the successful rehabilitation of their care recipients; (8) the main reason of influencing the caregivers’ emotion was the different period of the recovering process of their care recipients; (9) the social network groups contribute to maintain caregivers’ interpersonal relationships; (10) in this study, the financial pressure did not arise since the six families with visually-impaired members had favorable financial situations, hence, the caregivers were not suffering from financial dif-ficulties as some literature mentioned; (11) caregivers’ self-awareness of their challenges was helpful for them to cope with their negative experi-ences during the process; (12) looking for social support contributed to reconstruction of positive life for caregivers.
The conclusions about caregivers’ perceptions of social support con-tained: (1) appropriate methods can be made for caregivers through helpful informational support; (2) specific tangible supports are able to remove or alleviate the stress of caregivers; (3) longlines of caregivers will be reduced by using social network support; (4) emotional support from the care recipients makes the caregivers feel being loved and encouraged; (5) Recognition from care recipient, family members or outsiders is the sources of caregivers’ esteem support.
For promoting benefits of life care, this study offers suggestions to persons with visual impairments, caregivers and social support system of the society. Moreover, some suggestions are provided for the future re-search and limitations are also discussed.
參考文獻
王育瑜(譯)(1998)。迎接視茫茫世界(原作者:Rev. Carroll.:Blindness: What it is, what it does, and how to live with it)。雅歌。(原著出版於1961年)
朱貽莊(2010)。強化視覺障礙者獨立生活能力的新思維。社區發展季刊,130,334-348。http://lawdata.com.tw/tw/detail.aspx?no=152447
朱偉仁(2017)。不需要一個人獨自承擔。大田。
何志鴻、黃惠璣(2007)。影響身心障礙兒童家庭照顧者憂鬱之因素。身心障礙研究季刊,5(1),41-50。doi:10.30072/JDR.200703.0003
吳純慧、河內清彥(2010)。從失明時期探討中途失明者之日常生活問題與其相關影響因素。特殊教育學報,31,27-51。doi:10.6768/JSE.201006.0027
吳佳蒨、張千惠(2012)。全盲大學畢業生就業轉銜目標發展與就業轉銜需求之探究。中華輔導與諮商學報,33,53-85。doi:10.7082/CJGC.201208.0053
吳鄭善明(2015)。失智症長者主要照顧者心路歷程之研究-以社會支持論分析。美和學報,34(1),85-110。https://www.airitilibrary.com/Publication/alDetailedMesh?DocID=19981848-201505-201506150006-201506150006-85-110
吳若權(2016)。換我照顧您(陪伴爸媽老後的21堂課)。台北市:遠流。
林秋芬、宋旻諺、王迺燕等人(譯)(2010)。同情的負荷:精障之照顧者的愛與礙。(原作者:David A. Karp. The Burden of Sympathy:How Families Cope with Mental Illness)。洪葉文化。
林麗紋、陳黛芬(2016)。高齡妻子照顧生病配偶的心路歷程和因應之道-以雲林偏鄉一位八十高齡阿嬤為例。福祉科技與服務管理學刊,4(1),83-94。doi:10.6283/JOCSG.2016.4.1.83
林季誼(2017)。女性長期照顧者之社會支持與壓力探討。諮商與輔導,(375), 18-21及30。
周美田、周珮琪、李德茂、周立偉(2018)。從生命教育與重建探討中途失明者從事按摩業。身心障礙研究季刊,16(1),31-45。
柯明期 (2004)。中途失明者適應與重建之研究。國立臺灣師範大學特殊教育研究所碩士論文。取自https://hdl.handle.net/11296/bp7c6w
胡幼慧 (2014)。質性研究理論、方法及本土女性研究實例。巨流。
胡 梅 (2016)。家庭照顧者壓力、因應方式及其學習需求之探討-以六位失能老人主要照顧者為例。國立臺灣師範大學社會教育學系碩士論文。取自https://hdl.handle.net/11296/ps88vy
陳奕伸(2011)。從社會支持談運動教練對疆界的應對。大專體育,(115),6-12。doi:10.6162/SRR.2011.115.02
陳淑汝、李燕蕙、孫旻暐(2011)。困境裡的蒲公英─照顧中途失明者之女性配偶的衝擊。復健諮商,(5),1-23。doi:10.30123/RC.201112.0001
陳淑汝、李燕蕙、孫旻暐(2013)。照顧中途失明者之女性配偶的壓力與壓力因應。輔導與諮商學報,35(2),1-23。https://www.airitilibrary.com/Publication/alDetailedMesh?DocID=18181546-201311-201312020077-201312020077-1-23
陳乃綾 (2019)。解開照護枷鎖:人生必修的長照課,照顧家人你一定要知道的事。四塊玉文創。
許淑敏、邱啟潤(2003)。家庭照顧者的壓力源與因應行為--以一個支持團體為例。護理雜誌,50(5),47-55。doi:10.6224/JN.50.5.47
孫嘉玲、黃美瑜、宋梅生、陳施妮、李綉彩、王秀香(2005)。中風病患主要照顧者的生活品質與社會支持。台灣醫學,9(3),303-311。doi:10.6320/FJM.2005.9(3).01
莊惠鈞(2009)。中途視障者家庭關係變化之研究。國立暨南國際大學社會政策與社會工作學系碩士論文,南投縣。 取自https://hdl.handle.net/11296/ak3q54
莊雅琇(譯)(2018)。照顧,不必一個人硬撐! (原作者:橋中今日子著)。原水文化。
郭孟瑜、林宏熾(2009)。中途失明成人復原力展現歷程暨運作模式之建構。特殊教育研究學刊,34(3),47-80。doi:10.6172/BSE200911.3403003
張淑楨(2014)。視障家庭主要照顧者家庭功能、社會支持 與照顧負荷之研究。玄奘大學社會福利與社會工作學系碩士在職專班碩士論文,新竹市。 取自https://hdl.handle.net/11296/889m2e
張捷(2018)。中途失明全盲研究生學習歷程之敘事研究。輔仁大學教育領導與發展研究所碩士在職專班碩士論文,新北市。 取自https://hdl.handle.net/11296/7cq5xt
黃惠屏、吳瓊滿(2004)。協助一位家庭主要照顧者適應照顧壓力過程。護理雜誌,51(1),99-105。doi:10.6224/JN.51.1.99
黃國晏(2015)。中途失明者點字學習之心理調適。國立臺灣科技大學人文社會學報,11(4),281-306。
黃湘淳、蔡璧光、溫宛虹(2015)。一位因眼內炎導致失明個案之護理經驗。高雄護理雜誌,32(2),70-82。doi:10.6692/KJN-2015-32-2-7
鈕文英(2019)。質性研究與論文寫作。雙葉。
萬明美 (2000)。中途失明成人致盲原因及適應歷程之研究。特殊教育研究學刊, (19),59-78.
新北市勞動雲(2020)。取自https://ilabor.ntpc.gov.tw/page/visually-impaired
數位心智圖法軟體X-mind 8(2019)。https://actsmind.com/blog/xmind/xmind3download
蔡貞芬(2016)。成人視覺障礙者社會支持與復原力之研究。國立臺灣師範大學復健諮商研究所碩士論文。 取自https://hdl.handle.net/11296/42hcz4
潘淑滿(2017)。質性研究理論與應用。心理。
賴淑蘭 (2003)。且看我所聽到的—中途失明經驗談。啟明苑通訊,(49),7-12。
燕子 (2017)。等你回來,雖然你從未離開。方智。
衛生福利部(2020)。身心障礙人數按季。取自https://dep.mohw.gov.tw/DOS/cp-2976-13815-113.html
衛生福利部(2021):身心障礙按類別及障礙成因。取自https://dep.mohw.gov.tw/dos/cp-2976-61122-113.html
鍾宛貞(2008)。視障者休閒體驗及無障礙休閒環境政策之研究—以台中市中途視障者之自然科學博物館休閒體驗為例。靜宜大學管理學院管理碩士在職專班觀光事業組碩士論文。取自https://hdl.handle.net/11296/c2vpu6
顏姿卉、江秋樺(2015)。人生勝利組的變奏曲:與視障者的第一次訪談經驗。惠明特殊教育學刊,(2),163-171。doi:10.6297/JHMSE.2015.2(1).9
蘇榮裕(2013)。社會支持理論對樂齡大學學員影響之研究。亞洲高齡健康休閒及教育學刊,2(1),39-47。doi: 10.6262/ASHLE.201310_2(1).0004
Amir, Z., Wilson, K., Hennings, J. & Young, A. (2012). The meaning of cancer: implications for family finances and consequent impact on lifestyle, activities, roles and relationship. Psycho-Oncology, 21, 1167-1174. DOI: 10.1002/pon 2021.
Baer, R. M., Daviso III, A., Queen, R. M., & Flexer, R. W. (2011). Disproportionality in transition services: A descriptive study. Education and Training in Autism and Developmental Disabilities, 46(2), 172-185. http://www.jstor.org/stable/23879689
Baillie, V., Norbeck, J. S., & Barnes, L. E. (1988). Stress, social support, and psychological distress of family caregivers of the elderly. Nursing Research, 37(4), 217–222. https://doi.org/10.1097/00006199-198807000-00009
Barr, W., Hodge, S., Leeven, M., Bowen, L., & Knox, P. (2012). Emotional support and counselling for people with visual impairment: Quantitative findings from a mixed methods pilot study. Counselling and Psychotherapy Research, 12(4). 294-302.
DOI: 10.1080/14733145.2012.663776
Barrera, M. (1986). Distinctions between social support concepts, measures, and models. American Journal of Community Psychology, 14, 413-445. https://doi.org/10.1007/BF00922627
Barrera, M.Jr., Castro, F. G. & Martinez, C. R. Jr.(2004). The Cultural Adaptation of Prevention Interventions: Resolving Tensions Between Fidelity and Fit. Prevention Science, 5(1), 41-45. doi: 10.1023/B:PREV.0000013980.12412.cd
Bevans, M. F. & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307(4), 398-403. DOI:10.1001/jama.2012.29
Bianco, T. (2001). Social support and recovery from sport injury: Elite skiers share their experiences. Research Quarterly for Exercise and Sport, 72(4), 376-388. doi: 10.1080/02701367.2001.10608974
Braich, P.S., Lal, V., Hollands, S. & Almeida, D. (2012). Burden and depression in the caregivers of blind patients in India. Ophthalmology Science, 119(2), 221-226.
DOI:https://doi.org/10.1016/j.ophtha.2011.07.038
Cantor, F., Skala, J. & Wu, T. (2016). Interrelations between pain qualities, severity and disability. Journal of Pain, 17(4), 26-27. doi: 10.1016/j.jpain.2016.01.107
Caplan, G. (1974). Support systems and CommunityMental Health. New York, NY: Basic Book.
Chang, S., & Schaller, J. (2000). Perspectives of adolescents with visual impairments on social support from their parents. Journal of Visual Impairment & Blindness, 94(2), 69-84. doi: 10.1177/0145482X0009400202
Cimarolli, V. R., & Boerner, K. (2005). Social support and well-being in adults who are visually impaired. Journal of Visual Impairment & Blindness,99(9), 521-534. doi: 10.1177/0145482X0509900904
Cimarolli, V. R., & Wang, S. (2006). Differences in social support among employed and unemployed adults who are visually impaired. Journal of Visual Impairment & Blindness, 100(9), 545–556. https://doi.org/10.1177/0145482X0610000906
Clipp, E. C., George, L. K. (1990). Caregiver needs and patterns of social support. Journal of Gerontology, 45(3), 102-111, https://doi.org/10.1093/geronj/45.3.S102
Cobb, S. (1976). Social support as a moderator of life stress. Psychosomatic Medicine, 38, 300-314. doi: 10.1097/00006842-197609000-00003
Cohen, S. & Syme, S. L. (Eds.). (1985). Social Support and Health. Orlando, FL. Academic Press.
Cohen, S., Underwood L., & Gottlieb, B. H. (2000). Selecting and planning support interventions.Social Support Measurement and Intervention:A Guide for Health and Social Scientists, In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.). Oxford University Press. 195-220. https://doi.org/10.1093/med:psych/9780195126709.003.0006
Collins, N.L.,Dunkel-Schetter, Lobel, Marci, Scrimshaw, Susan C.(1993). Social support in pregnancy: Psychosocial correlates of birth outcomes and postpartum depression. Journal of Personality and Social Psychology, 65(6), 1243-1258. https://psycnet.apa.org/buy/1994-17211-001
Cutrona, C. E. & Russell, D. W. (1990). Type of social support and specific stress: Toward a theory of optimal matching. In B. R. Sarason, I. G. Sarason, & G. R. Pierce (Eds.), Wiley series on personality processes. Social support: An interactional view . 319-366.
Cutrona C. E., & Suhr, J. A. (1992). Controllability of stressful events and satisfaction with spouse support behaviors. Sage Journal, Communication Research, 19(2):
154-174. doi: 10.1177/009365092019002002
Danelljan, M., Robinson, A., Khan, F. S., & Felsberg, M. (2016). Beyond correlation filters: Learning continuous convolution operators for visual tracking. In: Leibe B., Matas J., Sebe N., & Welling M. (eds) Computer Vision – ECCV 2016.
Lecture Notes in Computer Science, vol 9909. Springer, Cham. https://doi.org/10.1007/978-3-319-46454-1_29
Demmitt, A.(2021). Ten tips for caregivers of individuals with vision loss. Vision Aware.
https://visionaware.org/emotional-support/for-family-and-friends/guidance-for-caregivers-of-individuals-who-are-blind-or-visually-impaired/ten-tips-for-caregivers-of-individuals-with-vision-loss/
Dreer, Laura E., Elliott, Timothy R., Shewchuk, Richard, Berry, Jack W.,Rivera, Patricia, (2007). Family caregivers of persons with spinal cord injury: Predicting caregivers at risk for probable depression. Rehabilitation Psychology, 52(3), 351-357.
https://psycnet.apa.org/buy/2007-12188-013
Dunkel-Schetter, C. (1984). Social Support and Cancer: Findings based on patient interviews and their implications. Journal of Social Issues. 40(4), 77-98. doi: 10.1111/j.1540-4560.1984.tb01108.x
Edwin, H. A. (2014). Visual impairment in the elderly and what care givers need to know: A literature review. Human Ageing and Elderly Service. https://urn.fi/URN:NBN:fi:amk-201401081094
Ell, K., Xie, B., Wells, A., Nedjat-Haiem., F., Lee., P. J. & Vourlekis, B. (2008). Economic stress among low-income women with cancer. Cancer, 112(3), 616-625. https://doi.org/10.1002/cncr.23203
Elliott, T. R., Shewchuk, R. M., & Richards, J. S. (2001). Family caregiver social problem-solving abilities and adjustment during the inital year of the caregiving role. Journal of Counseling Psychology, 48(2), 223–232. https://doi.org/10.1037/0022-0167.48.2.223
Erin, J. N.; Wolffe, E.K. (1999). Transition Issues Related to Students with Visual Disabilities. PRO-ED Series on Transition. PRO-ED, Inc.
Guerette, A. R., & Smedema, S. M. (2011). The relationship of perceived social support with well-being in adults with visual impairments. Journal of Visual Impairment & Blindness, 105(7), 425–439. from https://doi.org/10.1177/0145482X1110500705
Helgeson V.S., Cohen S., Schulz R., & Yasko J. (2000). Group support interventions for women with breast cancer:Who benefits from what? Health Psychol. 19(2):107-14. doi: 10.1037//0278-6133.19.2.107. PMID: 10762094.
Halpern, A. S.(1985). Transition: A look at the foundations. Exceptional Children, 51(6), 479-486. doi: 10.1177/001440298505100604
Hobfoll, S.E.(2001). The influence of culture, community, and the nested‐self in the stress process: Advancing conservation of resources theory. Applied Psychology, 50 (3), 337-421. doi: 10.1111/1464-0597.00062
Hobfoll, S.E.(1989). Conservation of resources: A new attempt at conceptualizing
stress. American Psychologist, 44(3), 513-524. doi: 10.1037/0003-066X.44.3.513
Hodge, S., Barr, W., Bowen, L., Leeven, M., Knox, P. (2012). Exploring the role of an emotional support and counseling service for people with visual impairments. The British Journal of Visual Impairment, 31(1), 5-19. doi:10.1177/0264619612465168
House, J. S.(1981). Work stress and social support. Addison-Wesley series on Occupational Stress. MA: Addison-Wesley.
Huebner, K. M. & Wiener, W. (2005). Special issue on orientation and mobility. Journal of Visual Impairment & Blindness. 99(10), 579. doi: 10.21307/ijom-2010-008
Huurre, T. M., Komulainen, E. J., & Aro, H. M. (1999). Social Support and Self-esteem among Adolescents with Visual Impairments. Journal of Visual Impairment & Blindness, 93(1), 26–37. from https://doi.org/10.1177/0145482X9909300104
Huurre, T.M. (2000). Psychosocial development and social support among adolescents
with visual impairment. Doctoral dissertations. Tampere University Press. Finland
from http://urn.fi/urn:isbn:951-44-4842-1
Kahn, R. L., & Antonucci, T. C. (1980). Convoys over the life course: Attachment, roles and social support. In P. B. Baltes & O. G. Brim (Eds.), Life-Span Development and Behavior. Academic Press, New York. 253-286
Kaplan, B., Cassel, J., & Gore, S. (1977). Social support and health. Medical Care,15(5), 47-58. Retrieved July 16, 2020, from www.jstor.org/stable/3763353
doi: 10.1057/palgrave.sth.8700025
Kef, S. (2002). Psychosocial adjustment and the meaning of social support for visually
impaired adolescents. Journal of Visual Impairment & Blindness, 96(1), 22–37.
https://doi.org/10.1177/0145482X0209600104
Khare, S., Rohatgi, J., Bhatia, M. S., & Dhaliwal, U. (2016). Burden and depression in
primary caregivers of persons with visual impairment. Indian Journal of
Ophthalmology, 64(8), 572–577. https://doi.org/10.4103/0301-4738.191493
Köberlein J., Beifus K., Schaffert C., & Finger R.P., (2013) The economic burden of visual impairment and blindness: A systematic review. BMJ Open. 3:e003471.
doi: 10.1136/bmjopen-2013-003471
Konstantinos Papadopoulos & Doxa Papakonstantinou (2020) The Impact of friends’
social support on depression of young adults with visual impairments. International Journal of Disability, Development and Education, 67(5), 484-496,
DOI: 10.1080/1034912X.2019.1620922
LaGrow, J.S., Ponchillia, E.P. & Ponchillia, V.S. (1998). The impact of service delivery
system on the individualization of rehabilitation programming for people who are
visually impaired. Washington, 30(2), 55-63.
https://www.proquest.com/scholarly-journals/impact-service-delivery-systems-on/docview/222957549/se-2?accountid=14526
Lakey B. & Cohen S. (2000). Social support theory and measurement. Social Support Measurement and Intervention: A Guide for Health and Social Scientist. In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.). Oxford University Press. 29-52.
DOI:10.1093/med:psych/9780195126709.003.0002
Langford, Bowsher, Maloney & Lillis. (1997). Social support: a conceptual analysis. Journal of Advanced Nursing,25(1), 95-100. doi: 10.1046/j.1365-2648.1997.1997025095.x
Lahav, O., Schloerb, D. W. & Srinivasan, M. A. (2013). Virtual environment system in support of a traditional orientation and mobility rehabilitation program for people who are blind, Presence, 22( 3), 235-254. doi: 10.1162/PRES_a_00153.
Minkler, M.P. (1981). Health education quarterly. Sage Journal, 8(2), 147-165.
Mitchell, R.E., & Hodson, C.A. (1983). Coping with domestic violence: Social support and psychological health among battered women. American Journal of Community Psychology, 11(6), 629-654. doi: 10.1007/BF00896600
Montarzino, A., Robertson, B., Aspinall, P., Ambrecht, A., Findlay, C., Hine, J. & Dhillon, B. (2007). The impact of mobility and public transport on the independence of visually impaired people. Visual Impairment Research, 9(2/3), 67-82.
DOI: 10.1080/13882350701673266
Parker, G. (1993). Disability, caring and marriage: The experience of younger couples when a partner is disabled after marriage. The British Journal of Social Work, 23(6) 565–580, https://doi.org/10.1093/oxfordjournals.bjsw.a056009
Papakonstantinou, D., & Papadopoulos, K. (2010). Forms of Social Support in the Workplace for Individuals with Visual Impairments. Journal of Visual Impairment & Blindness, 104(3), 183–187. https://doi.org/10.1177/0145482X1010400306
Papadopoulos K. & Papakonstantinou, D. (2020) The Impact of friends’ social support on depression of young adults with visual impairments, International Journal of Disability, Development and Education,67(5), 484-496, DOI:10.1080/1034912X.2019.1620922
Reber, A. S.(1995).The Penguin dictionary of psychology(2nd ed.). Penguin Press.
Schaefer, C., Coyne, J. C., & Lazarus, R. S.(1981). The health -related functions of social support. Journal of Behavioral Medicine, 4(4), 381- 406, doi: 10.1007/BF00846149
Shumaker, S.A., & Brownell, A. (1984). Toward a theory of social support: Closing conceptual gaps. Journal of Social Issues, 40(4), 11-36. https://doi.org/10.1111/j.1540-4560.1984.tb01105.x
Smith, C. E., Piamjariyakul, U., Yadrich, D. M., Ross, V. M., Gajewski, B., & Williams, A. R.(2010). Complex home care: part III--economic impact on family caregiver quality of life and patients' clinical outcomes. Nursing economic$, 28(6), 393–414. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3075108/
Steinbach, U.(1992). Social networks, institutionalization, and mortality among elderly people in the United States. Journal of Gerontology ,47, 183-190. https://doi.org/10.1093/geronj/47.4.S183
Stephen, J., L. & Helgeson, V. S. (1998). Social constraints, intrusive thought, and mental health after prostate cancer. Journal of Social and Clinical Psychology, 17(1), 89-106. doi: 10.1521/jscp.1998.17.1.89
Stevelink, S.A.M., Malcolm, E.M., & Fear, N.T. (2015). Visual impairment, coping strategies and impact on daily life: A qualitative study among working-age UK ex-service personnel. BMC Public Health 15,(1118). (totally 7 pages)
https://doi.org/10.1186/s12889-015-2455-1
Tan, C., Basta, J., Sullivan, C. M., & Davidson, W. S. (1995). The role of social support in the lives of women exiting domestic violence shelters: An experimental study. Journal of Interpersonal Violence. SAGE Social Science Collections, 10(4). 437-451. https://doi.org/10.1177/088626095010004004
Thoits P.A.(1985)Social support and psychological well-being: Theoretical possibilities. In: Sarason I.G., Sarason B.R.(eds) Social Support: Theory, Research and Applications,24, 51-72. doi: 10.1007/978-94-009-5115-0_4
Thompson, Jr. E. H., Futterman, A.M., Gallagher-Thompson, D., Rose, J. M., & Lovett, S. B.(1993). Social support and caregiving burden in family caregivers of frail elders. Journal of Gerontology, 48(5), 245-254. doi: 10.1093/geronj/48.5.S245
Verstraten, P.F.J., Brinkmann, W.L.J.H., Stevens, N.L., & Schouten, J.S.A.G. (2005).
Loneliness, adaptation to vision impairment, social support and depression among visually impaired elderly. International Congress Series,1282, 317-321. https://doi.org/10.1016/j.ics.2005.04.017.
Wilcox B.L., Vernberg E.M. (1985). Conceptual and theoretical dilemmas facing social support research. In: Sarason I.G., Sarason B.R. (eds) Social Support: Theory, Research and Applications,24. 3-20. doi: 10.1007/978-94-009-5115-0_1
Yeung, P. , Grow, .S.L., Towers, A., Alpass, F., & Stephen, C. (2011) The centrality of O&M in rehabilitation programs designed to enhance quality of life: A structural equation modelling analysis. International Journal of Orientation and Mobility, 4(1), 10-20. https://search.informit.org/doi/10.3316/informit.195702115751327