簡易檢索 / 詳目顯示

研究生: 丁雨婷
Ding, Yu-Ting
論文名稱: 智能障礙者雙老家庭之心盛典範
Flourishing Stories of the Aging Families of Adults with Intellectual Disabilities
指導教授: 姜義村
Chiang, I-Tsun
學位類別: 碩士
Master
系所名稱: 復健諮商研究所
Graduate Institute of Rehabilitation Counseling
論文出版年: 2017
畢業學年度: 105
語文別: 中文
論文頁數: 124
中文關鍵詞: 智能障礙者雙老家庭心盛質性研究
英文關鍵詞: the aging families of adults with intellectual disabilities, flourishing, qualitative research
DOI URL: https://doi.org/10.6345/NTNU202202401
論文種類: 學術論文
相關次數: 點閱:245下載:39
分享至:
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報
  • 進入千禧年以來,智能障礙者雙老家庭逐漸為實務界和學術界所關注。與此同時,心盛理論也因應正向心理學領域的發展而興起。回顧相關文獻,發現已有研究中,較無從積極角度來思考智能障礙者雙老家庭的正向意義,大多是從需求的視角來探討智能障礙者雙老家庭的困境和挑戰,並依研究結果提出了改善建議。故本研究欲以心盛理論為架構,期望透過本研究來達成以下目的:1)瞭解智能障礙者雙老家庭的真實生活樣貌;2)瞭解智能障礙者雙老家庭的積極力量來源;3)瞭解智能障礙者雙老家庭面臨的挑戰和因應方式。
    本研究採質性研究的個案研究法,深度訪談了三戶智能障礙者雙老家庭。研究發現這三戶智能障礙者雙老家庭:1)家庭作息規律且穩定,維持一定的健康;2)照顧者擁有積極情緒,強勁的復原力;3)因為血緣之愛投入著,有明確的生活意義與目的等特質;4)充分運用現有的社會資源(正式或非正式資源),明確未來雙老規劃或願意著手規劃;5)積極參與社會活動,擁有良好的社會互動、積極正向的人際關係和成就感。本研究總結發現若要實現智能障礙者雙老家庭的心盛,則需要有一個前提和三個元素:一個前提是照顧者個人是心盛的,即滿足PERMA五個因子;三個元素分別是人格特質、社會資源、社會互動,彼此之間環環相扣,並且發展出智能障礙者雙老家庭心盛元素圖。根據該圖,對智能障礙者的家庭照顧者、身心障礙權益推動者、政府正式服務提供者提出相關建議以參考。

    Since the beginning of the millennium, the aging families of children with intellectual disability have got much attention both in the field of practice and academia. At the same time, flourishing have been rising with the development of positive psychology. In the review of the relevant literature, it is discovered that little research has been done in a positive prospective to reflect on the positive meaning of the flourishing aging families of children with intellectual disability. However, most of the researchers have explored the difficulties and challenges of aging families of children with intellectual disability from perspective of demand, and put forward improvement suggestion according to the research result. Therefore, the purpose of this study is to combine the theory of flourishing to achieve the following objectives: 1) to comprehend the real life of aging families of children with intellectual disability; 2) comprehend the active source of strength of the flourishing aging families of children with intellectual disability; 3) comprehend the challenges and copying strategies of the flourishing aging families of children with intellectual disability.
    In this study, case study of qualitative research is conducted, and three aging families of children with intellectual disability were interviewed in depth. We found that the characteristics of aging families of children with intellectual disability include: 1)They have regular and structural families routines and health maintenance; 2)Caregivers have positive emotion and strong resilience; 3)The input of them is out of love and blood ties, and families have a clear meaning and purposes of life; 4)The existing social resources (formal or informal) is made of full use, and the future aging placement or willing is planned by families; 5)They actively participate in social activities, maintaining good social interaction, positive relationship and accomplishment. This study concluded that if we want to realize the flourishing of the aging families of adults with intellectual disabilities, it is necessary to meet a premise and the three elements. The premise is that the caregivers are flourishing, who can meet the PERMA. Three elements are personality traits, social resources and social interaction. Accordingly, the study has developed a flourishing factor pattern of aging families of adults with intellectual disability, and according to it, related suggestions have been put forward for reference for caregivers of families with aging people with intellectual disability, disability rights promoters and formal service providers of government.

    第一章 緒論 1 第一節 研究背景與動機 5 第二節 研究目的與問題 7 第三節 重要名詞釋義 8 第四節 本研究的限制 10 第二章 文獻探討 11 第一節 智能障礙者雙老家庭的狀況 11 第二節 「心盛」的相關研究 22 第三章 研究方法 26 第一節 研究參與者之選擇 27 第二節 研究者的立場與角色 29 第三節 研究工具 31 第四節 研究步驟 33 第五節 資料蒐集與分析 35 第六節 研究信實度 37 第七節 研究倫理 39 第四章 研究結果:有苦更有甜的喜樂人生 41 第一節 為母則強:媽媽陪你將世界玩透透 43 第二節 「你是我的寶貝」:阿嬤教你把歌兒唱溜溜 57 第三節 「我們家的皇帝」:爸媽帶你把美食嚐夠夠 68 第四節 雙老人生顯心盛 83 第五章 討論與建議:智能障礙者雙老家庭如何走向心盛 88 第一節 幸福是什麼? 88 第二節 智能障礙者雙老家庭的「心盛」生活 90 第三節 展望:「心盛」之花常開 97 第四節 反思中前行 100 參考文獻 103 附錄 117 附錄一 研究邀請函 117 附錄二 研究參與同意書 118 附錄三 主要照顧者訪談大綱 120 附錄四 訪談札記 122 附錄五 研究檢核函(一) 123 研究檢核函(二) 124 圖 目 次 圖5-1 智能障礙者雙老家庭心盛元素 96 表 目 次 表2-1 智能障礙者雙老家庭的相關研究彙整(2004-2016) 16 表2-2 智能障礙者雙老家庭權益保障相關規定整理 19 表3-1 三戶智能障礙者雙老家庭資料 28 表5-1 臺灣身心障礙福利機構2017年第一季度服務狀況 99

    壹、中文部分
    內政部(2013)。100年身心障礙者生活狀況及各項需求評估調查。臺北:內政部統計處。
    內政部(2016)。104年簡易生命表提要分析。取自http://sowf.moi.gov.tw/stat/Life/104%E5%B9%B4%E7%B0%A1%E6%98%93%E7%94%9F%E5%91%BD%E8%A1%A8%E6%8F%90%E8%A6%81%E5%88%86%E6%9E%90.pdf。
    內政部(2016)。內政統計月報。取自http://sowf.moi.gov.tw/stat/month/list.htm#1戶政、2民政。
    王文娟(2011)。智能障礙者雙老家庭壓力負荷之初探。身心障礙研究季刊,9(2),96-110。
    王文娟(2012)。中高齡智障者雙老家庭之居住模式建構。東海大學社會工作學系:臺中市。
    王文娟(2016)。中高齡智障者雙老家庭之親子家園居住模式可行性分析。身心障礙研究季刊,14(1),17-33。
    王國羽(2003)。中老年身心障礙者安置轉銜機制規劃之研究:以心智障礙者為例。台北:內政部社會司委託研究報告。
    王國羽(2007)。居家中老年智障者的照顧問題:性別、居住安排與相關論述。身心障礙研究,5(1),1-29。
    伍碧濤(2006)。愛的樂章--以一個失智老人家庭個案家屬長期照顧角色之探究(未出版之碩士論文)。台灣大學社會工作學研究所:臺北市。
    吳昭儀(2015)。國中教師心盛量表編製與應用之研究(未出版之博士論文)。高雄師範大學諮商心理與復健諮商研究所,高雄市。
    呂錦綸(2010)。雙重老化智障者家庭照顧負擔與社會支持之研究(未出版之碩士論文)。東吳大學社會工作學研究所,臺北市。
    身心障礙個人照顧服務法(2012)。2015年5月20日修訂。全國法規資料庫,http://law.moj.gov.tw/LawClass/LawAll.aspx?PCode=D0050187。
    身心障礙家庭照顧者服務辦法(2012)。2015年5月20日修訂。全國法規資料庫,http://law.moj.gov.tw/LawClass/LawAll.aspx?PCode=D0050186。
    身心障礙權利保障法(2007)。2015年12月16日修訂。全國法規資料庫,http://law.moj.gov.tw/LawClass/LawAll.aspx?PCode=D0050046(2016/12/24)。
    周月清(2013)。長期照護保險多元評估量表之細部規劃-針對智能障礙者之適用性評估及修正計畫。台北:衛生福利部委託研究報告。
    周耕妃(2014)。抉擇之愛雙重老化智障家庭(未出版之博士論文)。東海大學社會工作學系:臺中市。
    林昭吟(2008)。身心障礙者老化現象之概念探討與初探性實證研究。東吳社會工作學報,19,37-80。
    林昭吟、林季平(2004)。身心障礙者提前老化現象與健康照護需求之研究。台北:內政部委託研究報告。
    沈台訓譯(2015)。薛西弗斯的神話:卡繆的荒謬哲學。臺北:商周出版社。
    邱大昕(2014)。感官、智能與精神障礙者婚姻狀況變化初探1905 vs. 2006。身心障礙研究季刊,12(1),13-25。
    胡燕平(譯)(2010)。追究幸福—微笑中的科學(原作者:Daniel Nettle)。重慶市:重慶出版社。(原著出版年:2009)
    孫健忠、林昭吟、陳阿梅(2003)。老年身心障礙者與老人福利整合規劃之研究。台北:內政部委託研究報告。
    高斯謙譯,亞里斯多德著(2005)。尼各馬科倫理學。新北,商務。
    張庭瑋(2008)。「甜蜜的負荷」?家庭對於中高齡智障家人的照顧轉銜(未出版之碩士論文)。臺灣大學社會科學院社會工作研究所,臺北市。
    曹愛蘭(2010)。2010社會福利政策研究:老年身心障礙者之照顧安置與服務。內政部委託調查研究報告。
    陳伶珠(2008)。中高齡長期障礙者老化經驗與老年生活期待之研究(未出版之博士論文)。國立暨南國際大學社會政策與社會工作學系:南投縣
    陳伶珠(2011)。雙重老化智能障礙者家庭照顧經驗初探。台灣高齡服務管理學刊,1(1),138-165。
    陳玠汝、蔡和蓁、陳政智(2013)。中高齡智能障礙者家庭使用服務資源情形之探討。取自http://www.tasw.org.tw/eweb/uploadfile/20130319023137397.pdf。
    陳奕齡(2001)。初探智障者老化之相關健康與照顧議題(未出版之碩士論文)。中正大學社會福利研究所,嘉義市。
    陳政智、陳玠汝(2015)。我們必須面對的議題:智能障礙者老化需求。社區發展季刊,149,311-326。
    陳政智、簡秀玲(2013)。中高齡智能障礙者需求及服務模式之研究。台北:內政部委託研究報告。
    楊培珊(2005)。老人長期照護機構及社工專業的現況與展望。臺灣社會工作學刊,4,147-169。
    萬育維譯,Nolan,M. & S. Davies. & G. Grant 編(2004)。老人照護工作─護理與社工的專業合作。台北:洪葉。
    趙昱鯤(譯)(2012)。持續的幸福(原作者:Martin E.P. Seligman)。杭州:浙江人民出版社(原著出版年:2011)
    劉佳琪(2009)。台灣身心障礙者老化與因應對策:以智障者為例。新興福利國家與高齡化社會:學習與創新研討會。新竹:玄奘大學。
    潘佩君、嚴嘉楓(2011)。老年身心障礙者的福利資源配置及服務輸送:以台灣與英國為例。身心障礙研究季刊,9(2),111-122。
    衛福部(2014)。102老人狀況調查分析。取自http://www.mohw.gov.tw/CHT/DOS/Statistic.aspx?f_list_no=312&fod_list_no=4695。
    衛福部(2016)。身心障礙者人數。取自http://www.mohw.gov.tw/cht/DOS/Statistic.aspx?f_list_no=312&fod_list_no=4198。
    衛福部(2017)。身心障礙福利機構使用者人數按類別分。取自http://www.mohw.gov.tw/dl-22118-522804cc-db07-487c-9769-3dc885c880f0.html。
    蕭新煌主編(2014)。書寫臺灣第三部門史。高雄市:巨流出版社
    謝美娥(1993)。老人長期照護的相關議題。臺北:桂冠。

    貳、英文部分
    Barbara L. Fredrickson(1998). What good are positive emotions? Rev Gen Psychol,2(3): 300-319. doi:10.1037/1089-2680.2.3.300.
    Barbara L. Fredrickson(2001). The role of positive emotions in positive psychology: the broaden-and-build theory of positive emotions. Am Psychol, 56(3), 218-226.
    Baumbusch, J. (2017). Aging together: caring relations in families of adults with intellectual disabilities. Gerontologist, 57(2), 341-347. doi:10.1093/geront/gnv103
    Bigby, C. (1996). Transferring responsibility: The nature and effectiveness of parental planning for the future of adults with intellectual disability who remain at home until mid-life. Journal of Intellectual and Developmental Disability, 21(4), 295-312.
    Bigby, C., & Ozanne, E. (2004). Comparison of specialist and mainstream programs for older carers of adults with intellectual disability: Considerations for service development. Australian Social Work, 57(3), 273-287. doi:10.1111/j.1447-0748.2004.00151.x.
    Breitenbach, N. (2001). “Ageing with intellectual disabilities; discovering disability with old Age: same or different?”, In M.Priestley. (ed.), Disability and the Life Course: Global Perspectives. Cambridge, England: Cambridge University Press, pp. 231-239.
    Burke, E., McCarron, M., Carroll, R., McGlinchey, E., & McCallion, P. (2014). What it's like to grow older: The aging perceptions of people with an intellectual disability in Ireland. Intellectual & Developmental Disabilities, 52(3), 205-219. doi:10.1352/1934-9556-52.3.205.
    Conder, J. A., Mirfin-Veitch, B. F., & Gates, S. (2015). Risk and resilience factors in the mental health and well-Being of women with intellectual disability. Journal Of Applied Research In Intellectual Disabilities, 28(6), 572-583. doi:10.1111/jar.12153.
    Ekas, N. V., Timmons, L., Pruitt, M., Ghilain, C., & Alessandri, M. (2015). The power of positivity: predictors of relationship satisfaction for parents of children with autism spectrum disorder. J Autism Dev Disord, 45(7), 1997-2007. doi:10.1007/s10803-015-2362-4
    Evenhuis, H., Henderson, C., Beange, H., Lennox, N., & Chicoin, B. (2001). Healthy ageing- adults with intellectual disabilities: Physical health issues. Journal of Applied Researchin Intellectual Disabilities, 14, 175-194.
    Hamedanchi, A., Khankeh, H. R., Fadayevatan, R., Teymouri, R., & Sahaf, R. (2016). Bitter experiences of elderly parents of children with intellectual disabilities: A phenomenological study. Iranian Journal of Nursing & Midwifery Research, 21(3), 278-283. doi:10.4103/1735-9066.180385
    Hanke, K., van Egmond, M. C., Crespo, C., & Boer, D. (2016). Blessing or burden? The role of appraisal for family rituals and flourishing among LGBT adults. Journal of Family Psychology, 30(5), 562-568.doi:10.1037/fam0000214.
    Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal Of Applied Research In Intellectual Disabilities, 15(3), 269-275.
    Hélène O. , Ashleigh B. , Julie R. , Mary B. , Yona L. , Jonathan W. (2014). Family Resilience - An Important Indicator When Planning Services for Adults with Intellectual and Decelopmental Disabilities. Journal on Developmental Disabilities, 20, 55-66.
    Heller, T., Caldwell, J., & Factor, A. (2007). Aging family caregivers: Policies and practices. Mental Retardation & Developmental Disabilities Research Reviews, 13(2), 136-142.doi:10.1002/mrdd.20138.
    Holloway, S. D., Domínguez-Pareto, I., Cohen, S. R., & Kuppermann, M. (2014). Whose job is it? Everyday routines and quality of life in latino and non-latino families of children with intellectual disabilities. Journal of Mental Health Research in Intellectual Disabilities, 7(2), 104-125. doi:10.1080/19315864.2013.785617
    Huppert F.(2009).A new approach to reducing disorder and improving well-being. Perspect Psychology Science,4,108-111.
    Huppert, F. A., & Timothy, T. C. S.(2009). What percentage of people in Europe are flourishing and what characterises them? Prepared for the OECD/ISQOLS meeting “Measuring subjective well-being: an opportunity for NSOs?”. Retrieved from http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.550.8290&rep=rep1&type=pdf.
    Huppert, F. A., & Timothy, T. C. S.(2013). Flourishing across Europe: Application of a new conceptual framework for defining well-being. Social Indicators Research, 110(3), 837-861.
    Janicki, M. P. (1991). Building the future: Planning and community development in aging and developmental disabilities (NY 12229-0001). Retrieved from http://files.eric.ed.gov/fulltext/ED345391.pdf
    John, A., Bailey, L. E., & Jones, J. L. (2017). Culture and context: exploring attributions and caregiving approaches of parents of children with an intellectual disability in urban India. Child & Family Social Work, 22, 670-679.
    Keyes, C. L. M. (2002). The mental health continuum: From languishing to flourishing in life. Journal of health and social behavior, 43(2), 207-222.
    Keyes, C. L. M. (2005a). Mental illness and/or mental health? Investigating axioms of the complete state model of health. Journal of Consulting and Clinical Psychology, 73(3), 539-548.
    Keyes, C. L. M. (2005b). Chronic physical conditions and aging: Is mental health a potential protective factor? Ageing International, 30(1), 88-104.
    Keyes, C. L.M., & Haidt, J. (2003). Flourishing : Positive psychology and the life well-lived. Washington, WA: American Psychological Association.
    Keyes, C. L. M. (2007). Promoting and protecting mental health as flourishing: A complementary strategy for improving national mental health. American Psychologist, 62(2), 95-108.
    Keyes, C. L. M. (2009). The Black-White paradox in health: Flourishing in the face of social inequality and discrimination. Journal of Personality, 77(6), 1677-1706.
    Keyes, C. L. M., Myers, J. M., & Kendler, K. S. (2010). The structure of the genetic and environmental influences on mental well-being. American Journal Of Public Health, 100(12), 2379-2384.
    Lincoln, Y. S., and Egon Guba (1985). Naturalistic inquiry. Newbury Park, CA: Sage pubilcation.
    Linville, P. W. (1987). Self-complexity as a cognitive buffer against stress-related illness and depression. Journal of Personality and Social Psychology, 52(4), 663-676.
    Maaskant, M. A., Gevers, J. P., & Wierda, H. (2002). Mortality and life expectancy in Dutch residential centres for individuals with intellectual disability, 1991-1995. Journal Of Applied Research In Intellectual Disabilities, 15(3), 200-212.
    Manor-Binyamini, I. (2016). Positive aspects of coping among mothers of adolescent children with developmental disability in the Druze community in Israel. Journal of Intellectual and Developmental Disability, 41(2), 97-106. doi:10.3109/13668250.2015.1129665
    Matthew, B., Katey, M., Lori S. & Robert D. (2010). Parental caregivers’ desires for life time assistance planning for future supports for their children with intellectual and developmental disabilities. Journal of Family Social Work, 13, 420-434.
    Miller, E., Buys, L., & Woodbridge, S. (2012). Impact of disability on families: grandparents' perspectives. Journal of Intellectual Disability Research, 56(1), 102-110. doi:10.1111/j.1365-2788.2011.01403.x
    Minnes, P., Woodford, L., & Passey, J. (2007). Mediators of well-being in ageing family carers of adults with intellectual disabilities.Journal Of Applied Research In Intellectual Disabilities, 20(6), 539-552.
    Molas, A. (2016). Defending the CRPD: Dignity, flourishing, and the universal right to mental health. International Journal Of Human Rights, 20(8), 1264-1276. doi:10.1080/13642987.2016.1213720.
    Robinson, A. B. (2011). Caregivers' calling. Christian Century, 128(20), 26-29.
    Schlebusch, L., Samuels, A. E., & Dada, S. (2016). South African f amilies raising children with autism spectrum disorders: relationship between family routines, cognitive appraisal and family quality of life. Journal of Intellectual Disability Research, 60(5), 412-423. doi:10.1111/jir.12292
    Seligman, M. (2011). Flourish: A visionary new understanding of happiness and well-being. New York, NY: Simon & Schuster.
    Skrzypiec, G., Askell-Williams, H., Slee, P., & Rudzinski, A. (2016). Students with self-identified special educational needs and disabilities: flourishing or languishing! International Journal Of Disability, Development & Education, 63(1), 7-26.
    Snowden, M., Dhingra, S. S., Keyes, C. L. M., & Anderson, L. A. (2010). Changes in mental well- being in the transition to late life: Findings from MIDUS I and II. American Journal of Public Health, 100(12), 2385-2388.
    Tamar H., Joe C., and Alan F. (2007). Aging family caregivers: policy and practices. Mental retardation and developmental disabilities research reviews, 13, 136-142.
    Veitch, B. M., Bray, A., & Ross, N. (2003). "It was the hardest and most painful decision of my life!": Seeking permanent out-of-home placement for sons and daughters with intellectual disabilities. Journal of Intellectual and Developmental Disability, 28(2), 99-111.
    Webber R., Bowers B., & Mckenzie-Green B. (2010). Staff responses to age-related healthchanges in people with an intellectual disability in group homes. Disability & Society,25(6), 657-671.
    Weisner, Matheson, Coots, & Bernheimer, (2005). Sustainability of daily routines as a family outcome. In A. Maynard & M. Martini(Eds.), The psychology of learning in cultural context(pp. 41-73). New York, NY: Kluwer/Plenum. doi:10.1007/0-387-27550-9_3
    World Health Organization (2004). Promoting mental health: Concepts, emerging evidence, practice (Summary report). Geneva, Switzerland: World Health Organization.
    Xue, J., Ooh, J., & Magiati, I. (2014). Family functioning in Asian families raising children with autism spectrum disorders: the role of capabilities and positive meanings. Journal of Intellectual Disability Research, 58(5), 406-420. doi:10.1111/jir.12034
    Yamaki, K., Hsieh, K., & Heller, T. (2009). Health profile of aging family caregivers supporting adults with intellectual and developmental disabilities at home. Intellectual & Developmental Disabilities, 47(6), 425-435. doi:10.1352/1934-9556-47.6.425.

    下載圖示
    QR CODE